Update 1 - 

We had the devastating news yesterday that Frank's brain tumour is cancer. A rare Grade 3 Ependymoma tumour and without treatment will just regrow. We don't really have the words right now but just the feeling of complete and utter devastation. We hoped and prayed this wouldn't be the case and now feel in complete shock. Frank needs to have a lumbar puncture in the next couple of days to confirm the cells haven't spread to his spine, and once we know the results of that a treatment plan can be made for him. Please keep Frank in your thoughts he has now got one hell of a journey to go on #braintumourawareness #braintumour #Ependymoma #franksfight

Franks parents Josh and Emily along with his two sisters Olivia and Sofia are at the front line of a terrible horror story only most people have to endure in a night mare. For them this is their true story.

 Baby Frank was diagnosed with a brain tumour at age of 17months in may 2024. After a brain scan he was blue lighted to GOSH where Emergency Surgery relieved pressure in his brain but the struggle to stay alive was real. Induced in a coma baby Frank lay for days waiting for surgery to remove the large tumour on his brain.

Baby Frank survived an 11 hour surgery to remove the tumour. Although it’s is hopeful all the tumour was removed successfully, the next few days, weeks and months will reveal the full impact this may have caused.

 As Frank and his family learn how to adapt to their new way of life together kind words and offers of helping hands won’t be enough. A plea to soften the stress of money is in our hands. Together we can minimise the extra stress of living costs. 

Let’s help by giving what we can, and give them a great start to recovery. 

I know, when they get a chance they will be so grateful to everyone.  They are the most wonderful family. 

Frank we are your army.

You are our champion.