Our daughter, Jenny, is in Heaven now and free from Rett Syndrome. While her life was full of challenges, it was also full of blessings that taught us about love, resilience, patience, faith, and hope. We remember Jenny every day and in her spirit we hope no family endures the same heartbreak.

We are supporting Rett Syndrome Research Trust because they are the organization working to cure Rett. As the largest worldwide funder of Rett research, RSRT advances genetic medicines that target the root cause of this disease. Their programs, including gene therapy efforts that began with RSRT and are now in clinical trials, give real hope that a cure is possible. The commitment of Rett families around the world fuels this progress.

Every dollar helps fund critical research, clinical programs, and scientists to find a cure for this complex disease.

Please donate in Jenny's memory and help support the work that could spare other families from this pain. Your support brings us closer to a future where Rett syndrome is curable and no parent has to say goodbye too soon.

Pray for us St. Jenny.

Peace be with you,

Jenny's Parents