We are Shelley and Jeremy Petty and our 24-year-old daughter, Hailey, has Rett Syndrome. She has filled our lives with joy, quiet strength, and a love that needs no words. Living with Rett has brought challenges every day, but it has also fueled a fierce hope in us: that a cure is possible and within reach for our dear Hailey Bug and all who have Rett Syndrome.

We are supporting the Rett Syndrome Research Trust because they are the organization working to cure Rett. They are the largest worldwide funder of Rett research and are advancing genetic medicines that target the root cause. The gene therapy programs now in clinical trials began at RSRT, and their leadership and partnerships are bringing real progress to families like ours.

Every step RSRT takes is driven by the commitment and passion of Rett families across the globe. Their Roadmap to Cures 2.0 sets an ambitious path forward, and Jeremy and I are proud to stand with them. We believe in a future where our Hailey Bug and all those with Rett can thrive without limits.

Please join us in supporting the Rett Syndrome Research Trust. Your gift will power research and bring us closer to treatments and a cure. Together we can make a lifesaving difference for my daughter and the entire Rett community.