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Hi, my name is Nicki and am baby Khai’s Aunty, with permission from Steph and Andrew I have started this fundraiser to help support Steph and Andrew in spending as much time with Khai and provide as much normalcy filled with adventure while we can!
Khai is now 11months old. 9 months ago she was devastatingly recently been diagnosed with a rare and terminal genetic disorder, GM1 Type 1.
The disorder is untreatable and incurable, and while she is well right now, she will deteriorate severly and leave this world far earlier than she deserves, the medical team have advised anytime within 1-3 years and we are grieving the loss of our future together while she is still here.
The fun and exciting things we had hoped to do with her later will now be planned earlier, and the financial support will help us fulfill our dreams of showing khai the world and the adventures we want to share and experience with her.
Khai is such a gift. She brings us so much love that we thought wasnt possible and whilst we dont know exactly what the future looks like, but Khai will experience the best, albeit short life.
Andrew Steph and baby Khai are three beautiful humans who have touched the hearts of many and would love your support and positivity in anyway you can.
We thank you for your kind words and heartfelt messages, as they provide some comfort in this ridiculously trying time.

