Wheels for William

My name is Louise and I am a very proud single mother to 2 incredibly handsome, beautiful young men called William and Toby.

William is 21 and Toby is 18.

I have raised them on my own with no support for most of their life.

My oldest son William suffers from a very severe disability called Lannox Gastaut syndrome.

Sadly it is a regressive and refractory disease which takes a little more of him away from me every day.

William is non-verbal, incontinent, nil by mouth due to multiple aspirations, requiring all feeds done through a peg and has severe uncontrolled life-threatening seizures on a daily basis. William has all 40 seizure types and can have up to 200 a day.

William requires permanent 24/7 care.

Grieving the loss of a son and brother you have is something we have sadly come to realise, along with many sacrifices.

However, William tells me he loves me every single day without ever saying a single word and his unconditional love is a gift for that we are blessed and grateful for.

I have been williams words and advocate his entire life, and always will be, which is not always easy, but my philosophy in life is you never know unless you ask.

William has finally got his first brand new powered wheel chair which we can't wait to use but it does not fit in our current car.

We are putting it out there to raise enough funds to buy a new car to fit Williams new powered wheel chair and I believe we are going to do it, power of positive thought is how we roll, let's do it.