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At 10:16 AM on October 16th, 2020, Lillian Rose was born at just 24 weeks and 5 days.
At just 22 weeks, Morgan's water spontaneously broke. A rare occurrence that can happen in pregnancy. Following this Morgan spent three weeks in the hospital being closely monitored.
After about three weeks the doctors decided it would be safer for Morgan and Lillian to do an emergency c-section because her placenta started to detach.
The first 24 hours were the most critical. Lily was intubated almost immediately. She had a chest tube put in the first day of life, which lasted about a week before they were able to take it out.
The first month of Lillian's life was spent allowing her body grow. After her month they started her on her first round of steroids and they tried to take her tube out and put her on a C-Pap machine. That only lasted about 8 hours before they had to put the tube back in.
A few days later, they found out she had Phenomena for the first time. She was put on a long course of antibiotics for 21 days. During that time she had a broviac catheter put in, so she could get her meds without having to be poked over and over again.
It took 5 weeks before Morgan was even able to hold her due to the type of vent she had to be one the first few weeks of life.
Lillian has been officially diagnosed with Chronic Lung Disease and PDA of her heart.
For her heart, she'll have to get many Eco-cardiograms to monitor the health of her heart. She'll also be put on medication for Pulmonary Hypertension for years to come.
She has recently been transported to the Omaha Children's Hospital to get a Tracheostomy procedure and a G-tube put in. This procedure will give her more freedom to grow and develop like a healthy baby without being restricted by the tubes in her mouth. This will also allow Morgan and Matt to hold her the way she wants to be held and interact with her in all different ways.
The day after she arrived in Omaha, they did an eco on her heart and decided to a ligation of the PDA in her heart. Essentially, this means that they closed the hole in her heart by putting a plug in it.
The heart procedure went well and they will continue to monitor Lily for about a week before moving forward with the Tracheostomy procedure.
While Lillian continues to grow healthier and stronger every day, she still has a long road ahead of her before she is able to go home. The amount of time spent in the hospital with Lily has made it difficult for Morgan to work, especially now that she is located out of state. This has put financial stress on their family.
The funds raised will help with the financial obstacles they are facing right now so they can focus on giving Lillian the care she needs so she can come home soon.
The family is so grateful for the overflowing love and support that has been shown from family and friends during this time. Any amount donated helps and is greatly appreciated.
With love and gratitude,
Lillian & Family
At just 22 weeks, Morgan's water spontaneously broke. A rare occurrence that can happen in pregnancy. Following this Morgan spent three weeks in the hospital being closely monitored.
After about three weeks the doctors decided it would be safer for Morgan and Lillian to do an emergency c-section because her placenta started to detach.
The first 24 hours were the most critical. Lily was intubated almost immediately. She had a chest tube put in the first day of life, which lasted about a week before they were able to take it out.
The first month of Lillian's life was spent allowing her body grow. After her month they started her on her first round of steroids and they tried to take her tube out and put her on a C-Pap machine. That only lasted about 8 hours before they had to put the tube back in.
A few days later, they found out she had Phenomena for the first time. She was put on a long course of antibiotics for 21 days. During that time she had a broviac catheter put in, so she could get her meds without having to be poked over and over again.
It took 5 weeks before Morgan was even able to hold her due to the type of vent she had to be one the first few weeks of life.
Lillian has been officially diagnosed with Chronic Lung Disease and PDA of her heart.
For her heart, she'll have to get many Eco-cardiograms to monitor the health of her heart. She'll also be put on medication for Pulmonary Hypertension for years to come.
She has recently been transported to the Omaha Children's Hospital to get a Tracheostomy procedure and a G-tube put in. This procedure will give her more freedom to grow and develop like a healthy baby without being restricted by the tubes in her mouth. This will also allow Morgan and Matt to hold her the way she wants to be held and interact with her in all different ways.
The day after she arrived in Omaha, they did an eco on her heart and decided to a ligation of the PDA in her heart. Essentially, this means that they closed the hole in her heart by putting a plug in it.
The heart procedure went well and they will continue to monitor Lily for about a week before moving forward with the Tracheostomy procedure.
While Lillian continues to grow healthier and stronger every day, she still has a long road ahead of her before she is able to go home. The amount of time spent in the hospital with Lily has made it difficult for Morgan to work, especially now that she is located out of state. This has put financial stress on their family. The funds raised will help with the financial obstacles they are facing right now so they can focus on giving Lillian the care she needs so she can come home soon.
The family is so grateful for the overflowing love and support that has been shown from family and friends during this time. Any amount donated helps and is greatly appreciated.
With love and gratitude, Lillian & Family
Organizer and beneficiary
Morgan Dahl
Beneficiary