Everleigh Ann's journey continues

To follow what is going on with Eve check out her caring bridge page.https://www.caringbridge.org/site/b850a640-eca5-11ef-9d0e-f58cf58f5b4c?utm_source=website_share&utm_medium=share_button&utm_term=&utm_content=link_share_button&utm_campaign=private_home_page My name is Brenda Banks, I am Everleigh's grandma. I am starting this fundraiser to help with her families expenses as we search for answers. Here is their story. Written by her mom and dad. Alysha Eastman and Mason Walberg

We’re still uncertain on how much we want out there about our beautiful little girl. But where we start is asking anyone willing to add her to your prayers, please also include her medical team- as we search for answers. It started in December we noticed she wasn’t doing as much as she was before. She all the sudden refused to stand anymore. Wasn’t putting her arms in the air asking to be picked up anymore, and then she wasn’t turning her head and looking up- movements seemed so painful and she would cry out. I brought this up to her doctor and we thought maybe she just sick and stiff. But my momma gut said that’s not all that is going on. Remembering her brother used "a help me grow program" to help with his walking I called them. They came out and did an assessment on her and found she excelled in all areas, some even in the 99.6th percentile. Except for her gross motor- that was in the 2nd percentile. Just as I suspected somethings going on with her large motor skills. Finally someone was listening. They started physical therapy at our home once a week- these ladies are an absolute blessing. It also helped me show her Dr something is not right. With her severe gross motor delay and declining mobility and strength she sent referrals down to Gillette Children’s. And added some additional outpatient physical therapy until we get our answers. We make our first trip down to Children’s hospital for a sedated MRI, heart echo and meet with a neurologist on March 20th. But in the meantime while we wait she has been getting the help me grow program one hour a week and just last week we started outpatient physical therapy in Brainerd twice a week. I can not say enough about all Three of our therapists. She is not back to where she was in December. But our girl is working her tail off she is so happy and determined it is truly the most beautiful thing to watch. It pains us that it has to be so hard for her, but she says that’s okay mom and dad I’m going to show you how strong I can be. This last week she started reaching above her head for exercise with momma and almost has full range of motion when looking right, looking left is still very hard for her. But lately we have noticed her pain is not so bad and that makes our hearts happy. As many things have been very painful for her the last three months. There are a few medical possibilities that could be life altering. But until all the tests are done and we get answers all we can do is pray. We are so proud of you Everleigh. And promise no matter what it takes we’ll get the answers and we promise one day we’ll get you up chasing your big brother around driving him crazy.

Please say a prayer for Everleigh and her family, we are trying to fundraiser to take the burden off the family so they can focus on Everleigh and her journey. Thank you all for supporting them while they search for answers. UPDATE from Eve's dad: A few things I've learned in my life, every situation has 2 outcomes. Lean more positive!

If it's a long road, make it the best ride possible!

Life is precious!

Everleigh has a long road now. We will strive to find the answers and the best outcome for her care! We may have not gotten the answers we wanted, but theres a silver lining. The doctor ruled out MD ( Muscular Dystrophy). They did find some spots on the brain and a spot in her spinal cord that are abnormal. She does have a curve in her spine that is scoliosis, That was a confirmed diagnosis.

Things new to the table:

We will meet with a spinal and brain neurologist, they will evaluate her scans for damage that could lead to Cerebral Palsy diagnosis. (PRAYERS ITS NOT BUT IS SHOWING SIGNS!) WE continue physical therapy and pray her mobility gets better and corrects the brain and spine that would be a miracle! Please continue to PRAY for our little girl. It's going to be an uphill road but she's a tough little girl and will beat this! Thanks for all the support and we will keep you updated as we throttle through!