Here is a story from my good friends the Kolmakov family.  Please help our beautiful and intelligent daughter, Evelina, get the life-changing surgery that will allow her to walk, jump and play with other children. That will be a wonderful once-in-a-lifetime gift.
       Evelina is a long-awaited, beloved, and only child in our family. With a successful pregnancy, she was born on time, but her body was not getting enough oxygen, she was hypoxic, and her brain suffered as a result. We knew in the hospital that something was wrong, but they released us anyways and told us she was healthy.
       Immediately,  after discharge, I began to notice some disturbing symptoms: Evelina was hard to swaddle and even harder to change her clothes, her arms were very tight, she was restless, she hardly slept and cried a lot. She struggled to put on weight and keep food down.
     We started spending a lot of time with our doctors to monitor her. By the fourth month, my anxiety was growing because with all my heart I was waiting for new skills and achievements of Evelina . . . But they did not appear. It's scary to even remember how we were running from one neurologist to another.
      Everyone around us kept telling us the importance of learning basic skills now, like walking and talking so that she did not have developmental delays. The future depended on what we could do in that period of time. At that time we went through several large courses of massage, drug therapy, but Evelina was still unable to do anything. The medications made her cry and she didn't sleep  neither during the day nor at night.
       At 6 months, we finally had a diagnosis of Cerebral Palsy (CP) from our neurologist. This is a neurological disorder that causes Evelina's muscles to be in a constant state of tightness and pain making it difficult to balance, walk and do other things that kids normally do.

      Over the last 5 years, Evelina has had countless hours of occupational therapy and other therapies, even being fitted for AFOs (ankle-foot orthotics). Even with all these therapies and treatments Evelina still needs assistance doing regular day-to-day tasks, such as going up and downstairs, walking on uneven surfaces, and her balance is also affected. People with CP age early, live with chronic pain, and develop joint deformities over time. Even children who are considered to have a “mild” diagnosis like Evelina will see their mobility decline in the teens, 20s, or 30s.
 

  Like any parent, our daughter's future and quality of life is always at the top of our minds. Although it seems so far away, grownup CP issues are a major concern for us as we want her to live the best possible pain-free and independent life she can. 
   

Recently, after a very long wait, Evelina was accepted into a surgery program called Selective Dorsal Rhizotomy (SDR). This is the only surgical treatment that will provide a permanent reduction of spasticity in our daughter's legs. It will allow her to walk, run, dance, and keep her balance without constantly falling down.
    So, she dreams to be a zoo director or a soldier or a clown… But we know, at least one dream will come true and the miracle of being able to run and jump will happen in her life. It's possible and you may be that wizard who can help her in that. You can  help by a repost, or resending the page's link, or donate.
     Let's help her get off the walker and run away from them!


SDR Surgery, in hospital recovery, orthopedic surgery, braces, Post-Operative Therapy:

$ 60,000.00

The surgery will be done by MD T.S. Park
https://neurosurgery.wustl.edu/people/t-s-park-md/ 
 Our group in Facebook https://www.facebook.com/groups/767718870616057