Epilepsy. A peaceful environment for my daughter.

An invitation to help out my daughter.

My daughter is 7 years old.

We are a family of 2, always have been.

One autumn day in 2019, she suddenly felt sick in the playground. She rolled her eyes, was unresponsive and I thought she was going to die. We were taken by ambulance to the hospital's shock unit and discharged a week later with a suspected diagnosis of epilepsy.

Almost four years later, after five extremely long seizures (all of which required emergency medical attention), countless short seizures and regular visits to specialists, we still don't know what kind of epilepsy my daughter has.

She just keels over out of nowhere.

The only thing we know for sure is that my daughter is sensitive to stress and that stress triggers seizures.

Since school started last summer, our situation has become much worse.

The hopeless situation of having to take my daughter to school every morning, where she is exposed to enormous stress, and knowing that she is not doing well there, tears me apart. The stress of the day at school affects the night, and the night affects the next day.

The doctors advised me to find a new school for my daughter as a matter of urgency.

After months of searching and unsuccessful door-to-door visits to schools in Berlin, I found a wonderful school abroad. My daughter got a place starting this summer. There, epilepsy is not considered a disability and there are always two nurses on the premises.

Please help my daughter to learn in an environment where she feels comfortable.

So that her talents can be nurtured and we can both have quiet, restful nights.

The cost of a nocturnal monitoring device that detects possible seizures is not covered by health insurance because they don't yet know what type of epilepsy my daughter has.

At the end of May we will go back to the clinic for 48 hours of video monitoring. My daughter will again be connected to a machine for 48 hours in a small room under constant video surveillance. The radius of movement is the hospital bed.

I'm not giving up hope that, after almost four years, the cause of her seizures will finally be found and she can start taking the right medication.

We will use the money for school fees and for a night monitoring device.

Thank you so much.

Danke.

With love,

Elisa