
Help get transportation to Appointments
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Hi, my name is Nakia Lewis. I am the mother of a wonderful and amazing son name Dezmin. I'm a mother reaching out for a cry of help. My baby is 14 years old and is battle complications from Sickle Cell Disease. Many may not know what it is but this is a disease that is inherited from both parents that affect the blood and the shape of the cells and causes severe pain in different parts of the body.
I'm a single mother that moved to Colorado hoping for a better life with my children. Upon arriving here, I experienced a lot from being homeless to having car trouble after hitting a deer on the road. Dezmin was excited to move to Colorado to see something different.
We didn't know all the complications that would arise once he settled in. The day after moving here Dezmin went into a pain crisis like never before. He ran a fever for the first time in almost 10 years, come to find out he was experiencing Spleen Secretion. The doctors had inform me that is spleen was enlarged and was about the size of a fish.
After spending a week in the hospital, he was well enough to just go home on his home medication. Fast forward last week Dezmin started having pain again in both legs. The pain is so intense that he wasn't able to walk on his legs. After going through the steps to get my getting his pain under control. The Hematology team decided to admit him again.
Dezmin has been in the hospital for a week his pain his 10 out 10 his spleen is enlarged again. His hemoglobin drop extremely low that he needed to have a transfusion this morning. He also needs surgery to have his spleen removed. Doctors can't do the surgery until after he is no longer in a crisis.
Because of everything that is going on I'm having a really hard time trying to get my vehicle out the shop. I am a working mama but Sickle Cell doesn't tell you when it's coming it shows up and I have to adjust my life to insure my son is OK. I'm missing work and can't come up with the money for the repair shop who is making the repairs.
I am not able to get to the hospital like I want because of my transportation issues. If any one can help, whatever you give will be so gratefully appreciated. From Dezmin and I both. I am normally not the person to go to people and ask for help. Let alone go on social media. I'm very private about my life and want to always protect my children.
But what do you do when your all out of options.... I just pray this message touches someone this evening from and mother to a mother.....a little help is all I'm asking for and if you only have a prayer to give us I would appreciate that even more. When two or more gather in the presence of the Lord he shall be with them and I know he will answer each and every prayer request. God bless and thank you all!
Organizer
Nakia Lewis
Organizer
San Antonio, TX