Please visit our new campaign to continue supporting the fight for children with Sanfilippo Syndrome. The campaign on this page is no longer accepting donations due to GoFundMe changing payment processors. Please visit the new page at www.SavingEliza.com
Every single dollar raised here has, and continues to go to Cure Sanfilippo Foundation, a 501c3 nonprofit (tax ID: 46-4322131). Donations are tax deductible. Cure Sanfilippo has a mission to advocate and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome. In short, we fund research to save children via treatments & clinical trials. No dollars ever go to or for any particular family or child. We tell individual stories, for the greater cause and mission....which is to cure this terrible fatal brain disease in little children, often referred to as a Childhood Alzheimer's. Our deepest and humble thanks for visiting this page and considering support. You are our hero! Glenn O'Neill (Dad, Donor and President of Cure Sanfilippo Foundation) [email redacted] (anytime)
It all started back in 2014, with this 3 minute video:
Now, we truly believe we are witnessing a miracle. What else can explain more than 36,000 people already donating more than $2 million dollars, over the past 2 years, to fund a chance at life for our daughter Eliza and other children. Diagnosed 3 years ago with Sanfilippo Syndrome —a terminal disease sometimes called “Childhood Alzheimer's”— Eliza has now become the first child in the world to have been given this new treatment! The second child has also been treated and in the coming months & through next year, a few handful more children around the world will be part of this groundbreaking gene therapy clinical trial that is already showing promising results.
The WORLD decided to rally around our little girl for this greater cause, and she’s become the face of this disease…a symbol for Sanfilippo parents everywhere not to give up HOPE.
And we’re not giving up on them either.
Many more children are still fighting, and we won’t stop until every last one of them is afforded a chance at life. There are more children that need this treatment than there are available spots in clinical trials, and these precious little ones can’t wait. Given the rapidly degenerative nature of Sanfilippo Syndrome, not receiving a treatment, and soon, is a death sentence. Can you imagine being one of these parents?
Since treatment, we see a new light in Eliza’s eyes— she is connecting with us in a way we thought was gone forever. She is working to regain the skills the disease stripped away in the 6 and half years it tore through her body. She is a fighter! Other Sanfilippo children deserve this chance too. At this stage, funding is one of the only things that will accelerate research to give these children a chance. Money doesn’t make the world go round, but it does bring medical treatments faster to children who are dying.
Our goal is to reach $4M here to help make this happen. Please donate TODAY to give these beautiful Sanfilippo children a rightful chance at life. Please share so the world can hear their collective voices.
Our hearts are forever thankful for giving our daughter Eliza and others a chance at life. We are reminded of one quote from a special supporter that has helped us through the hard days: “Keep the faith, and the faith will keep you”. We believe!
Glenn, Cara, Beckham and Eliza (The O’Neill Family)
Learn more about Sanfilippo Syndrome here www.CureSFF.org/about-sanfilippo
Meet just some of the Sanfilippo families here: www.CureSFF.org/meet-the-families
Paisleigh and the Butler Family
Rowen and the Fernandez Family
Izzy and the Jurado Family
Keira and the Esposito Family
Parker and the Talbert Family
Abby Grace and the Ferguson family
All funds go toward the mission of our non-profit 501c3 Cure Sanfilippo Foundation (Tax ID: 46-4322131), which is to advocate for and fund research directed toward a cure or treatment options for children with Sanfilippo Syndrome. We are out to end this disease and help ensure treatments for as many children as possible along the way. We must reach our goal and mission before it is too late for these beautiful children. With a donation and a share, you can make the difference! Action saves lives. Action brings miracles. Our daughter Eliza is proof of that.
Donations are tax-deductible.
Other donation options:
--www.CureSFF.org (click Donate)
--By check: Cure Sanfilippo Foundation, PO Box 6901, Columbia, SC 29260
Follow the latest at www.facebook.com/ElizaOStory
Special thanks to the artists, who worked free of charge to help us:
Video by the amazing Benjamin Von Wong
Photograpy by the talented Anna Tenne Photography