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Elizabeth was medavaced and also lifeflighted and expenses for my brother and sister-in-loves family of 9 are still unknown. Thank you for your support! We love you!
Jeff’s initial information…
We had a great few days in the Tetons. We all hiked over 30 miles and we’re really having a joyful and good time. We all went to sleep normally Sunday night (7/25) in our tents at 9:30. We were over 8 miles up into the range. Will was in a small tent with Henry and Elizabeth and screamed to me at 4 AM that Elizabeth wasn’t breathing. I ran to their tent and pulled her out and started CPR. God’s mercy had put us on a hill where we were able to run up a ways and call 911. Elizabeth got a pulse back and slowly began to breath more and more regular. The helicopter was there in maybe 20 minutes and flew her out to Idaho Falls. We packed up and hiked out over 8 miles in a bit over 4 hours. She was nearly at her baseline a couple hours later with almost all tests being normal except her ECG. Her QT was 760 ms which Impressed almost everyone. They life-flighted her to SLC to the pediatric CICU and are doing a full work-up. This morning a cardiac MRI. The pediatric EP is great and says this is most likely and fitting a type 3 Long QT Syndrome and likely congenital. This is a sodium pump channel issue as far as I can tell. Anyway, we are in SLC and the morning is much more calm today. It was quite a traumatizing event for all and I am a bit concerned for the kids. That being said, God’s mercies are more and more evident as I think through this: Will is the only child that sleeps lightly and noticed this; had we been at home or anywhere else, there would not have been someone sleeping 1 inch from her (3 people in a 2 man tent). Most kids with this long of a QT and this variant die in their sleep. She was able to be revived. We were in one of the only areas for cell reception and decided at the last moment to stay at that location for the night instead of getting a head start for the next day and dropping into the canyon where there is no cell reception for 8 miles or place to land a helicopter.
Update #2, Wed. pm, 7/28/21
Tracy’s Brief MIRACLE SUMMARY at bottom…
From Jeff:
Okay-
Genetic testing is still pending so exact details are not known or confirmed. That being said, the medical community that deals with this is very small in the US (pediatric electrophysiologists) and many have been involved discussing Elizabeth’s case (texts, emails, etc.) as it is one of the most severe cases that the community has seen. She has also been talking to one of the world’s experts in this inherited disorder at the Mayo. They are making decisions together.
She is starting a second medication today and likely will be on these two medications the rest of her life. They are discussing a defibrillator, but are waiting for more details as these carry many risks themselves.
She is feeling well.
Jesus has been good to us.
From Tracy:
OK, I don’t know about you, but when I heard this news I had to walk away from the group because it brought me to such tears! In my heart the Holy Spirit was confirming that it is the most extreme case that they have ever seen, because the majority of the time the child does not survive.
There are an incredible number of miracles within this major miracle, but I do stress the fact that Will, a loving 15-year-old brother, cared enough to wake from his sleep and pay attention in the middle of the night and the fact that Jeff revived his precious child and was able to access the necessary medical help, while the rest of the family cried out to Jesus!!! I believe God heard and answered their prayers. It is so tragic when we hear that peoples’ similar cries to God were not answered in the way they had hoped, and we are now much more empathetic to those situations.
When Charlie and I were talking about this today, he said God must have a big plan for Elizabeth’s life. I told him I agree with him 100% and that God is going to use her to help these doctors learn more about what they can do to hopefully catch, treat, or prevent Long QT syndrome. We give HIM all the Glory tonight and ALWAYS!
Organizer and beneficiary
Jeff Skogen
Beneficiary

