Elisa’s fight against Motor Nurone Disease
Donation protected
2020 was a hard year for most, and for some, it was downright cruel. For my sister, Elisa, it was particularly devestating.
Elisa was about to turn 30 when she discovered it was a possibility that she had Motor Neuron, otherwise known as Amyotrophic Lateral Sclerosis, or ALS. A hairdresser by trade, Elisa was having difficulty using her dominate hand to do things like hair drying and sought medical investigation. Unfortunately in Feburary 2021, it was confirmed that she did, in fact, have ALS.
ALS is a debilitating disease, with a general estimate of life being 2-5 years from diagnosis, but varying for each individual. Science does not yet understand what causes ALS, and sadly, there is no cure for this awful disease. ALS is the loss of communication between the muscles and brain, imparing the ability to move, speak, swallow and breathe. It will, over time, cause loss of the use of limbs, and the ability to perform even the most simple tasks. Elisa will require full time care.
With COVID-19 wreaking havoc around the world, unfortunately the opportunity to travel overseas to participate in trials and experimental medicine is not an option.
With this being tragic enough, a young woman who should be in the prime of her life being diagnosed with such a horrific disease, she will not only leave behind a devoted husband, Daniel, and two beautiful children, Hudson (7) and Ivy Rose (4), amongst a loving family.
Elisa was advised to stop work immediately, as extra stress can speed up the progression of ALS. This puts huge financial pressure on her family, leaving Daniel as the sole bread winner.
I have started this GoFundMe not only to raise awareness of this disease, but to raise funds to help Elisa live the best possible life in her final years, and also to help Daniel and the children plan for a future without my sister.
We, as a family, are dedicated to making Elisa's final years as comfortable and fulfilling as possible. Any amount that can be spared will go toward helping us do this, and to ensure some financial stability for her husband and children.
With much gratitude,
Kylie Cruikshank on behalf of the Cruikshank and Baker families
Elisa was about to turn 30 when she discovered it was a possibility that she had Motor Neuron, otherwise known as Amyotrophic Lateral Sclerosis, or ALS. A hairdresser by trade, Elisa was having difficulty using her dominate hand to do things like hair drying and sought medical investigation. Unfortunately in Feburary 2021, it was confirmed that she did, in fact, have ALS.
ALS is a debilitating disease, with a general estimate of life being 2-5 years from diagnosis, but varying for each individual. Science does not yet understand what causes ALS, and sadly, there is no cure for this awful disease. ALS is the loss of communication between the muscles and brain, imparing the ability to move, speak, swallow and breathe. It will, over time, cause loss of the use of limbs, and the ability to perform even the most simple tasks. Elisa will require full time care.
With COVID-19 wreaking havoc around the world, unfortunately the opportunity to travel overseas to participate in trials and experimental medicine is not an option.
With this being tragic enough, a young woman who should be in the prime of her life being diagnosed with such a horrific disease, she will not only leave behind a devoted husband, Daniel, and two beautiful children, Hudson (7) and Ivy Rose (4), amongst a loving family.
Elisa was advised to stop work immediately, as extra stress can speed up the progression of ALS. This puts huge financial pressure on her family, leaving Daniel as the sole bread winner.
I have started this GoFundMe not only to raise awareness of this disease, but to raise funds to help Elisa live the best possible life in her final years, and also to help Daniel and the children plan for a future without my sister.
We, as a family, are dedicated to making Elisa's final years as comfortable and fulfilling as possible. Any amount that can be spared will go toward helping us do this, and to ensure some financial stability for her husband and children.
With much gratitude,
Kylie Cruikshank on behalf of the Cruikshank and Baker families
Organizer and beneficiary
Kylie Cruikshank
Organizer
Lilli Pilli, NSW
Elisa Baker
Beneficiary