Hello everyone, we are a family of 4, with two moms. My wife Roselin and I  have two handsome boys, Noah, 10 & Dylan, 19 months old.  Our son Dylan was diagnosed with a very rare genetic disorder called MECP2 duplication syndrome, which is associated with RETT SYNDROME (in girls only).  This condition is progressive and could be fatal. The life span so far is possibly 25 years old. With Dylan's condition has come alot of hospitalizations, surgeries and many many sicknesses, with that has also come backed up bills, certain supplies not being covered by insurance, losing our jobs and much more. A little about Dylan, in his 19 months of life he's had about 7 surgeries, over 20+ hospitalizations, he takes daily about 8-10 medicines and has about 16-20 people on his team from Early Intervention and his specialist at Boston Children's Hospital, also he has appointments in Boston about 2 times a week and has therapy 4 days a week. He is also NOTHING BY MOUTH, 100% GJ-tube fed.
His condition comes with a lot like hypotonia, muscle spasticity, global developmental delay, autistic traits, frequent respiratory infections, speech delay, sometimes no speech at all and also seizures. With every and any donation you give, it would be such appreciated and would help alot financially and also emotionally because having a special needs/complex medical child is very difficult and also scary and just emotionally hard. Our family has gone through and been going through more than just rough times, but we keep going forward and fighting the good fight with God first always. Your donation will go towards helping us pay some of our house bills, medical bills and supplies not covered by health insurance, transportation and food. Dylan has a surgery coming up this month and those are expenses that become difficult because of gas and money for food. We will definitely keep you updated on everything that goes on with Dylan.


We will like to thank you ahead and tell you that we are super grateful for what ever you donate. God bless you all