- D
- R

Hello friends, this is a long read, I apologize in advance! As some of you know and some don't, I am pregnant with a baby girl named Delaney and she was diagnosed about a month ago with a defect called Left CDH(Left Congenital Diaphragmatic Hernia). For anyone who doesn't know what that is, basically, her diaphragm didn't heal up all the way when she was growing and there is now a hole in her diaphragm that has pulled most of her lower organs(stomach, spleen, bladder, and a small portion of her liver) into her upper left chest cavity. This has caused her heart to shift to the right cavity wall and her left lung no longer has the room it needs to develop. Thankfully her right lung has enough room to partially develop while she is in the womb, but when she is born she is going to have to have a repair surgery for her organs to be moved back into place and the hole to be patched up. She will also be placed on a breathing machine called ecmo and will need to be fed by tubes until her lungs begin to develop more on their own to enable her to come off of ecmo. They estimated her recovery time in NICU to be 9-12 weeks. Jeremy and I were originally going to be relocating to a hospital a couple of hours away from us in Ohio around 32 weeks in march for her delivery and after birth care, but during our visit and testing with them we were informed that her condition was moderate-severe, and she had a 90% chance of needing ecmo but would only be allowed on the machine for 4-5 weeks max, and had about a 75% chance of survival. They also told me that if her case was any worse, they couldn't guarantee that ecmo would work fast enough for her and basically once they pull a baby off of ecmo there is not much else they can do for them(basically it's a 50/50 chance that your baby responds fast enough and lives.) I thought that was the final answer when I left that day and I didn't question what I was told. We just prepared to relocate and pray everything turned out okay. Well, a couple of days later I felt an urging in my spirit to ask around to some mothers who have gone through this same thing with their baby and I was overwhelmed by the response I got urging me to get a second opinion and choose a hospital who would go the distance for my baby. After looking and praying we got a second opinion from highly known and respected CDH doctor in Florida at John Hopkins All Children's hospital who told me that the results I was given from my testing were wrong, and Delaney is most definitely a severe case. The other hospital didn't realize how serious her condition was and I knew then that they would not be able to give her the care that she needed. I was told from JHACH that they would be willing to keep her on ecmo for as long as she needs it and will do everything in their power to make sure she goes home as healthy as possible. They then gave her a 95% chance of survival from the same information I was given a 50% chance from at the previous hospital. Jeremy and I will be relocating to Florida as soon as my appointments begin at JHACH, which will be a couple of weeks from now, but we will not be able to stay at the Ronald Mcdonald House until I am 34 weeks which is the middle of March. We weren't at all prepared for this big life change and sudden relocation, but we will do whatever it takes to make sure our baby girl is in the best hands possible. We were given hope when all we heard before was bad news and doctors telling us to prepare for the worst. We don't currently have all of the funds we need to make this journey and pay for transportation, lodging, and the extra bills we will have while we're gone, but I know God has sent us here for a reason and we're acting through faith that he will take care of us on the way. It's scary and stressful to let go of our plans and jump on a completely different path leading us to a 6 month relocation to a different state, but we know this is where we are supposed to go. If anyone feels led to donate or pray, every single bit means the world to us. We have received so much love and support so far, and I wish that It was easy to give simple and short answers, but it's hard for us to even keep up with all of the changes that have been happening over the last month or so. We will do our best to keep everyone updated along the way! -Jeremy and Meg

