I'm very fond of my hair. It makes my head look bigger, making me look smarter. Recently I was told my hair looks perfect. This moment gave me a high I'll never forget.

But I'm prepared to give up my good hair days to raise funds for a good cause.

Ehlers-Danlos Syndromes are a group of genetic connective tissue disorders. People living with hyper-mobile EDS experience pain, fatigue and other symptoms. It's the most common type.

I've seen how managing hyper-mobile EDS is a daily challenge, and that more research is needed to help people with EDS understand how to ease their symptoms and treat the condition.

I'll be shaving my head to raise money for the Ehlers Danlos Society , giving to research into possible treatments, long-term pain management options, and uncovering its genetic markers.

Any donation will have an impact.

More information about Ehlers Danlos Society : The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals & supporters dedicated to saving & improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders & related conditions. It support collaborative research & education initiatives, awareness campaigns, advocacy, community-building & care for the EDS & HSD population. Our goals are world-wide awareness & a better quality of life for all who suffer from these conditions.