To Help Jaicion Live His Best Life With SMA

My baby boy Jaicion was diagnosed with SMA type1 when he was just 1 week old .

Spinal muscular atrophy (SMA) is a rare genetic condition characterized by the progressive loss of motor neurons, which are the specialized nerve cells that control voluntary movement, leading to muscle weakness and atrophy, among other symptoms.

There are several types of SMA, based on the affected gene, age at symptom onset, and severity of symptoms.

SMA is divided into five main, common types — 0, 1, 2, 3, and 4 — based on the age of symptom onset and the highest motor milestone achieved. All of these types are caused by mutations in the SMN1 gene, which provides instructions to produce a protein essential for motor neuron and muscle health.

SMA type 1

Type 1, also called infantile-onset SMA or Werdnig-Hoffmann disease, is the most common type of SMA, accounting for 60% of cases. Symptoms usually begin in the first six months of life, and typically include muscle weakness, poor muscle tone, developmental delays, and difficulties breathing and swallowing. If disease-modifying treatment is not initiated, most of these infants do not survive past age 2, usually due to respiratory failure.

Jaicion received his first treatment of Zolgensma at 2 months . That didn’t meet the needs we expected so we are seeking into another treatment . Praying that we get approved for it

With medical bills and transportation etc. Dad is the only one working due to me having to stay home and take care of Jaicion and my 2 other children. Jaicion starts physical therapy 

 and we have constant visits with the neurologist & I have no vehicle to take him back and forth due to it being totaled just last month . We need to relocate into a bigger home to make Jaicion as comfortable as can be . Our home at the moment isn’t too spacious. We are looking for a new home but even with that it’s hard in so many ways and we get no assistance. This money will also help us with any medical equipment Jaicion needs. If anyone can help. Donate. Share we’d truly appreciate it. God bless all of you! ❤️ 

His story is on his facebook and Instagram @Jaiciontraylor.. 

Update: We are truly thankful for all of you who took the time out to share and donate. Thank you, thank you, thank you. God bless you all