Demir Oktay

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Demir Oktay

Demir Oktay

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Inspire others and help Ersan build momentum.
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‌Demir OKTAY SMA Tip-1 İlerleyici Kas Hastalığı ile mücadele eden minik bir evladımızdır. ‌Bebeğimiz geç tanı konulup ve geç valilik izni almıştır. ‌Demir evladımız için yaşam umudu olan Zolgensma gen tedavisi için sizlerin maddi ve manevi desteğinize ihtiyacımız var.

Demir Oktay is a young child battling SMA Type-1 Progressive Muscular Dystrophy. Our baby was diagnosed late and received late permission from the governor's office for treatment. We need your financial and moral support for Zolgensma gene therapy, which offers hope for life for our son Demir.

Demir Oktay is een jong kind dat lijdt aan SMA type 1, een progressieve spierdystrofie. Bij onze baby werd de diagnose laat gesteld en kreeg hij pas laat toestemming van het kantoor van de gouverneur voor de behandeling. We hebben uw financiële en morele steun nodig voor de gentherapie met Zolgensma, die hoop biedt op een beter leven voor onze zoon Demir.

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Ersan Kurt
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The Hague
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