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Help Declan O'Connor Fight MPS1-Hurler Syndrome

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Dear Friends, Family, and Kindhearted Supporters,

We are reaching out with heavy hearts to ask for your help in supporting a brave 4-month-old baby boy, Declan O'Connor, who has recently been diagnosed with MPS1-Hurler Syndrome. This rare and life-threatening genetic disorder causes progressive damage to various organs and tissues, leading to severe physical and developmental challenges. As Declan begins his medical journey, Chantel and Brandon face the overwhelming reality of the extensive treatments he needs to fight this devastating condition.

MPS1-Hurler Syndrome affects Declan's ability to grow and develop normally, and without immediate intervention, it will significantly impact his future. To give him the best chance at a healthy life, Declan requires a series of treatments, including enzyme replacement therapy, bone marrow transplant, and chemotherapy. These therapies are crucial for Declan and will help slow the progression of the disease.

Declan will require ongoing medical care at SickKids Hospital, one of the most renowned pediatric hospitals in the country. While the medical staff at SickKids are world-class, the financial demand of hotel stays, travel, and loss of income are adding up quickly. The O'Connor family is doing everything they can, but they need the support of the community to ensure that they can be there around the clock for Declan during his treatments.

This GoFundMe campaign has been created to help alleviate some of the financial strain on the family and to ensure that Declan can receive the best possible care. Every donation—no matter how large or small—will go directly to funding Declan and supporting his family through these difficult times.

We know that times are tough for many, but if you are able to contribute in any way, it will make a world of difference in Declan's fight against MPS1-Hurler Syndrome. We also ask that you share this campaign with your friends, family, and networks. The more people who know about Declan’s story, the stronger the support he will receive.

Together, we can make sure Declan and his family receive the medical care and treatments he needs to fight this rare disease.

Thank you for your kindness, generosity, and support. With your help, we can give Declan the strength and hope he needs to face this battle and give him the best chance at a brighter future.
From the bottom of our hearts, thank you for standing by Declan and his family during this incredibly challenging time.

With sincere gratitude, the O'Connor family
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    Co-organizers (3)

    Katrina Mullen
    Organizer
    Fort Erie, ON
    Chantel O'Connor
    Beneficiary
    Kathryn Burrows
    Co-organizer

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