Bringing Home a Blessing

We are the Deweeses. In a nutshell, we are a family that loves the Lord and desires to carry on His purpose in our lives - no matter what. We feel God has called us to grow our family and raise an army that loves and serves Him with all of it's might!

As so many in our community already know, we were blessed with a beautiful little baby girl, Jillian about 4 years ago. Healthy, funny, witty (yes, sometimes sassy) and downright fun, she has been such an awesome addition to our family. Last year we felt God calling us to have another child. In July we discovered we were pregnant but very soon had complications which led us to believe we were miscarrying. After a visit to the doctor, an ultrasound showed we had been pregnant with triplets (naturally) and were miscarrying two of the babies. YES! That meant although we had lost two, there was still one little heartbeat going strong. There are no words to describe our feelings at that moment. We went on to have a completely normal pregnancy. A true miracle child would join our family in March 2014! On Wednesday, February 12th (3 weeks early) Gavin was born a handsome, 6lb 5oz sweet baby boy with lots of dark brown hair. He was just what we had hoped for and we were so excited! The first day of his life was wonderful. He was held and bathed by his big sister, Jillian and he was able to visit with family and friends. As his first day with us progressed, it became evident something was wrong. The next day, Gavin was life flighted to Kosairs Children's Hospital in Louisville, KY because he was not eating or moving on his own. After several days passed, many tests were performed and he was placed on a ventilator, it was determined Gavin had a rare genetic disorder called NKH (Non Ketotic Hyperglycinemia). We had no idea this metabolic disorder even existed, let alone we are both carriers of it! Our little man was laying lifeless, unable to eat, move or breathe on his own. The doctors and staff did a wonderful job explaining what his future would be like, although it was not what we wanted to hear. There is NO cure for this disorder and although some treatment is available, it often causes more harm than good. He would have a short life expectancy and would have to endure severe mental retardation and all of the problems that came along with it. No walking, talking, eating on his own, etc. He would need constant care for the rest of his life. After much prayer, we felt completely at peace removing his ventilator and giving him back to the Lord. We removed the ventilator and were told he would pass away quickly but God had other plans. He remained alive for an entire extra day... NO tubes, NO wires, NO testing... It was an amazing bonding experience! We are so grateful to God for that awesome day! On Thursday, February 20th Gavin took his last breath. Since then, we have spent many days grieving over the loss of our precious baby boy. We have met with genetic counselors, a maternal fetal specialist, etc. to determine what our future looks like in regards to any more biological children. Because we both carry the NKH gene, our risk is very high for any of our future children to be born with this disorder. We have prayed, seeked counsel, prayed some more... We knew we wanted to have more children but how?

About a month ago, we decided to begin the adoption process. At this time, we have chosen to proceed with a domestic adoption and take in a child here in America. Any race, gender, etc. We desire to bring a baby into our home and love him or her as God has called us to do. We are finishing up our home study process and will soon just be waiting for our baby!  The costs of adopting a child are overwhelming at times but after all we have been through, WE KNOW GOD HAS A PLAN AND WILL PROVIDE! After Gavin passed away, we were inundated with medical bills. Our family and community came together and helped us. We will forever be grateful for that! We have been praying about the costs and asking God to reveal His plan. Jason prayed about this last week and laid it all in God's hands. Today, he heard from a high school friend who said he had been thinking about us and wanted to help. He had been asking around and was told about this website. Thank you, Lord (and Matt)! We decided to place this ad and leave the rest up to God. If anyone is willing/able to help financially, great. If not, we desire your prayers more than anything! Our deepest desire is to see God work not only in our lives but in others' lives as well. 

"Rejoice always, pray continually and give thanks in ALL circumstances for this is God's will for you in Christ Jesus."
- 1 Thess. 5:16-18

Donations

  • Anonymous 
    • $100 
    • 65 mos
  • Doug Brown  
    • $50 
    • 65 mos
  • Jim and Polly Fierstos 
    • $150 (Offline)
    • 66 mos
  • Hawley Family 
    • $1,000 (Offline)
    • 66 mos
  • Anonymous 
    • $100 
    • 66 mos
See all

Organizer

Megan Deweese 
Organizer
Owensboro, KY
  • #1 fundraising platform

    People have raised more money on GoFundMe than anywhere else. Learn more

  • GoFundMe Guarantee

    In the rare case that something isn’t right, we will refund your donation. Learn more

  • Expert advice, 24/7

    Contact us with your questions and we’ll answer, day or night. Learn more