Krabbe is a genetic disorder that affects the central and peripheral nervous system. There is no cure. The life expectancy is around 2 years old.. So here I go, I have never been one to ask for help, or a handout, or a pity party for personal struggles. With that being said I am swallowing my pride and, I am asking anyone that would like to contribute to an event to benefit my son Jaxon who has early onset infantile krabbe disease. No matter how big or small your contribution may be, any contribution is greatly appreciated. I want to thank anyone and everyone who is willing to participate. Letting everyone know that most proceeds will go to our family personally to help make ends meet with a family that has had to adjust to a one income family at the worst time possible, given the cost of living and inflation based on the economy we currently live in. If a donation or time is not available at this time we fully understand and would ask that any and all prayers or positive vibes be sent our way in a time we need it most.
Organizer
Arin Miller
Organizer
Galesburg, IL