Create lifelong memories for Juniper and family
Spende geschützt
We are fundraising for Juniper and her family to be able to create extra special experiences and moments together despite Juniper being very poorly.
Juniper was born with an incredibly rare genetic condition called TBCD. She is one of only around 20 children diagnosed worldwide. Although Zoe and Paul have only received the diagnosis recently, Juniper has spent the last 3 months in and out of hospital, mostly in. Juniper is on many medications to stop her from having constant seizures and she is also now nil by mouth so needs to be fed through a tube. Juniper has undergone a barrage of tests and treatments only to be told that it is a neurodegenerative condition with no known treatments or cure. Sadly this is a life limiting disorder and with Juniper being on the more severe end of the spectrum, her future will not only be incredibly challenging, it could also be very short.
Juniper’s loving family have all faced many struggles and continue to be a strong unit for Juniper, her brother River (and angel brother Taj). Juniper is a Warrior just like her Mum and Dad and we know no matter for how long, she will know how truly loved she is. Donating to this fundraiser will help ease the financial pressure and enable this beautiful family the opportunity to create special memories together in any way they desire to celebrate the blessing of Juniper and her outstanding bravery. Thank you.
Juniper was born with an incredibly rare genetic condition called TBCD. She is one of only around 20 children diagnosed worldwide. Although Zoe and Paul have only received the diagnosis recently, Juniper has spent the last 3 months in and out of hospital, mostly in. Juniper is on many medications to stop her from having constant seizures and she is also now nil by mouth so needs to be fed through a tube. Juniper has undergone a barrage of tests and treatments only to be told that it is a neurodegenerative condition with no known treatments or cure. Sadly this is a life limiting disorder and with Juniper being on the more severe end of the spectrum, her future will not only be incredibly challenging, it could also be very short.
Juniper’s loving family have all faced many struggles and continue to be a strong unit for Juniper, her brother River (and angel brother Taj). Juniper is a Warrior just like her Mum and Dad and we know no matter for how long, she will know how truly loved she is. Donating to this fundraiser will help ease the financial pressure and enable this beautiful family the opportunity to create special memories together in any way they desire to celebrate the blessing of Juniper and her outstanding bravery. Thank you.
Organisator
Alexandra Dodds
Organisator
England
