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Betsys sensory room roof repairs

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Betsy was born with no sign of disabilities despite almost losing her at 32weeks due to placenta abruption,and being born at 35weeks.


As time went on she was diagnosed with autism, adhd,hypermobility and benign hydrocephalus(fluid on the brain)alongside something called right cerebella tonsilla ectopia that was picked up on one of 3 mri scans. 


Despite this Betsy would sing,dance,play with toys and say hundreds of words,although life was very challenging Betsy could somewhat communicate her needs.


Sadly over the last year Betsy has regressed,now 6years old Betsy has lost all spoken language and is losing some motor skills.Betsy can no longer play with toys or communicate her needs, even small things she could do before like blowing bubbles she is now unable to do.Betsy requires 24hour care and attends a fantastic special school. 

The impact of caring for a child with a high level of complex needs takes its toll on all the family,with limited space indoors for the things that benefit her and on only one wage,there is little left to have building work and repairs done.


As a household we lost a lot of living space to adapt the house as Betsy required her own bedroom. There are 6 of us living in our home. The one room vital for Betsy is the conservatory where she spends a lot of her time , using a special chair to sit at the table for meals,to do sensory activities and it is also the way 
through to her sisters bedroom ,adapted from our dining room this in turn halved our kitchen leaving us with no dining room to sit Betsy and a tiny kitchen space , this made the conservatory even more vital. 

The roof has leaked for eight years , we have paid for patch up repairs and this is no longer possible due to the severity of the problem.
The room is unusable, extremely cold and floods in bad weather,this also impacts Betsy sisters bedroom.

Not being able to use this room takes away vital space.

We are very fortunate that we are receiving help from the wonderful Eco Roofing Se, who have sourced donated materials from very 
kind suppliers and are undertaking the work and planning of an eco roof that will enable the room to be used all year round. This will benefit Betsy and us as a family hugely by 
allowing us room to give Betsy the sensory and practical space she so desperately needs.

This would not be possible without the help of eco roofing se , however there will be added costs to a project like this and if we can raise
even a few pounds towards this it will make so much difference, times are hard for people due to Covid so even a share on someone’s 
page will be so much appreciated!!




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Donations 

  • Joanne Darville
    • £20
    • 3 yrs
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Organizer

Sarah Scott
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