This little guy’s name is Logan and he is 4 months old. His parents, Shaneace and Matthew, both work hard and live in Singleton.
When Logan was born, he was born with very high blood pressure and despite many appointments with specialists, they were never given any answers and Logan was just given blood pressure medication.
4 weeks ago they set off on their first little holiday to the Gold Coast. All was going well until Logan started to develop a rash, began vomiting and became extremely irritable. He was rushed to the Gold Coast University Hospital Emergency Department where the assessing doctor was certain it “was just a UTI” so they were sent home with a script for antibiotics.
8 hours later, Logan still wasn’t himself. The rash returned, the vomiting continued, he was sweaty and his hand started turning purple.
He was rushed back to emergency where he was assessed by a different doctor and was admitted straight away. The doctors struggled to understand what was wrong and decided to do a series of scans and blood tests.
It turns out Logan has 2 forms of Vasculitis and the doctors think they are Kawasaki/Poly Arterial Arthritis. They could possibly have discovered the vasculitis the first time he presented to the hospital. His blood was clotting and cutting off circulation to his limbs. Logan was sedated, put on to a ventilator and transported via ambulance to the Queensland Children’s Hospital where he remained in a critical condition.
The doctors were unsure how to treat Logan as his condition is extremely rare and they had not seen a case like this in a new born before. Slowly, the blood circulation to Logan’s limbs was non existent. The doctors found numerous clots throughout his body - including his heart and lungs. Two treatments of medication to break these clots down were not successful.
More than a week went by and once he was considered stable enough, Logan was transferred by air ambulance to Westmead Children’s Hospital so that he could be closer to family. Logan has been in ICU for a month now. The doctors are still unsure how to treat his condition at this stage and have been reaching out to doctors overseas for possible answers. They have also performed a genetics test which was sent to America and the results are due to come back in November 2019.
Mum is still on paid maternity leave but that finishes soon. Being so far from home, Dad hasn’t been able to work as Logan is still too critical and they can not go home. Mum and Dad still have to pay the everyday living expenses and the emergency savings they have put aside are draining away.
Given the damage to Logan’s arms, unfortunately they will have to be amputated and at this stage it is looking like the same will happen on his left leg but to what extent they are not sure just yet.
As you could imagine, times are going to be pretty tough especially in the coming months with surgeries, Logan’s pain management and so on. The cost of prosthetics is relatively large and they will also have to modify their home and car to be able to make Logan's life more comfortable for him. So they are asking if you could please dig in to your pockets and spare however much you can to help give this little guy his best shot at life.