Baby Krue

Baby Krue was diagnosed with Hypoplastic Left Heart Syndrome at 19 weeks.

This is when the left ventricle of the heart is smaller than the rest. At around 28 weeks, an ultrasound located some abnormalities in Krue’s bowel and intestines. As well as, the likelihood of him having Rocker Bottom Feet. They were told that a scheduled CSection would be necessary at a specialized hospital or Krue would probably not survive. At 31 weeks, Kelsey went into preterm labor but the hospital was able to slow the contractions. On 9/11, she was having contractions again that were not able to be stopped. She was rushed to Cincinnati and was admitted to UCMC. She was given medication and steroids to help Krue's lungs. Her water broke on 9/14. Krue was breeched and progressing fast, so an emergency CSection was necessary. The epidural worked 50/50 and Kelsey was able to feel a lot of the pain during the surgery.

Krue Oliver Storm Warner was born at 5:06 p.m., weighing 4 pounds, 12 ounces.

He was able to breathe on his own and was doing really well considering his prematurity. He was transferred quickly to Cincinatti Children’s Hospital where he remains in the Cardiac Intensive Care Unit.

At one day old, he had his first operation to remove a portion of his intestine.

At 10 days old, he had his first heart surgery to repair the coarctation of his aorta.

After the surgery, he had trouble maintaining his blood pressure and it would drop to scary low numbers. His team of doctors, his cardiac surgeon, and the nurses at Children’s were phenomenal. They were able to stabilize him after two hours with blood and a lot of medication. Since this, things have been up and down, but overall he is fighting hard to hang in here.

As of today, September 26th, we are in a much better spot with his blood pressure and heart rate. However, we still aren’t completely sure what the next steps will be for his heart. His team will continue to monitor his heart and stats, and our hope is to not have to continue with our original plan of doing the left ventricle bypass. This would entail a series of at least three more major heart operations from now until he is around 3 years old. My prayer is that the repair of his aorta was sufficient and that a Krue won’t have to endure all of those extra surgeries. However, unfortunately, that cannot be ruled out as an option yet.

Krue has a gtube, and an Ostomy at this time. He will also need to have a second operation on his intestines in the future.

If you can, I pray that you would consider donating to help pay for expenses at this time. Kelsey has 2 kids at home as well as Krue. He is fighting for his life. Anything is appreciated. If you cannot donate at this time, I ask that you keep Kelsey, her family, and especially Baby Krue in your prayers. It's a long road ahead, but God is with us always.