Katie & Corey Loehr- On April 7th my husband and I were on our way to our anatomy ultrasound, we were super excited to verify the gender and to see a detailed scan of our baby. All I can remember was being on cloud nine while looking at the ultrasound smiling from ear to ear in excitement. We got our ultrasound pictures of our sweet baby boy!! He was so tiny and perfect in every way, we kept laughing about how he was not shy to show off that he was a boy. The ultrasound tech left and said the doctor will be in to see you shortly, we were still talking about the pictures and his cute little hands and feet. Then the doctor walked in and said she wanted to double check the ultrasound tech; I didn’t think anything of it because I was just excited, I get another chance to see my baby. After about fifteen minutes the doctor told us she sees and abnormality with his heart. At this point my heart sank into my chest and the whole room got quiet. It felt as if the room had stopped for the rest of the ultrasound. She showed us a diagram of what a normal heart looks like and then showed us how underdeveloped one side of his heart was (Hypoplastic Left Heart Syndrome). Trying my best to listen through all the shock and tears she explained that his heart and stomach were also on the wrong side of his body, she said this was called Heterotaxy. At this point she told us she wanted to schedule an appointment with a pediatric cardiologist to verify and explain more. I just remember sitting in the car and my husband and I not saying a word the whole way home. Thoughts were racing. Is there anything I have done to cause this? Did I do something before I knew I was pregnant? Can I change the diagnoses? What is the outcome? Will my baby be okay? We had to wait about a month for him to get a little bit bigger before seeing the cardiologist, that was the longest month of our lives. After meeting with this specialist from Riley she did verify that he has HLHS and Hetrotaxy. Hypoplastic left heart syndrome (HLHS) is a congenital birth defect that affects the left side of the heart, leaving it under-developed and unable to pump oxygenated blood through the body. The left ventricle of the heart is too small in patients with HLHS, leaving the right ventricle to do all the work. HLHS typically requires three reconstructive surgeries to redirect the blood flow: the Norwood (which he will have 4 to 10 days after he is born), Glenn (he will have when he is 3 to 6 months old) and Fontan procedures (which he will have when he is 3 to 5 years old). One of the rarest and more severe heart defects is hypoplastic left heart syndrome (HLHS), which affects about 2 to 3 percent of babies born with a congenital heart defect. Heterotaxy syndrome is a condition in which some of the organs of the body are not located in their correct positions and some organs have not formed normally. Some children with heterotaxy syndrome have complicated congenital heart disease and need heart surgery. Some need abdominal surgery, and some do not have a spleen. Soon after we found out about his condition, we began our journey of multiple appointments, and stressful nights. I am Currently 31 weeks pregnant and we have had our ups and downs between me being sick and small complications during this pregnancy. He is being monitored very closely by some amazing doctors. We have met with a fantastic team up at Riley and are very hopeful of the outcome. I will be induced September 1st and then he will have his first open heart surgery 4 to 10 days after he is born. He will have a total of three surgeries, each surgery will repair his heart a little more. He will be in the intensive care unit for up to 6 weeks after his surgery hopefully less. Currently, he is super active and likes to kick mom all day and especially at night! We are excited to meet our bundle of joy; we have a long road ahead and ask for as many prayers as we can get!