Baby Haydi-Rae ❤️

Hi everyone ❤️

My name is haydi-Rae loxley, I was born 39 weeks on 31/12/25 at 14.07pm weighing just 4lb12oz. Later that evening after being born I had trouble breathing whilst taking my feed, so I was took to neonatal to help me get better where I was also suffering from seizures.

I then had lots of tests done, and 3 weeks on I was doing brilliant, so well that I only had my feeding tube and mammy and daddy where told they could take me home

Everyone was so excited, but sadly the day before I was going home on the 21/01/25 mammy and daddy got called in for a meeting where they were told my genetics testing results had came back and I needed more tests. Then on the 23/01/25 another meeting was held and my mammy and daddy where told I had trisomy 18 to the full extent, which is a life limiting illness. They said I can go to a hospice or I can go home with my family for them to enjoy the time we have got left and of course they are taking me home

For anyone who doesn’t know about my illness, they say I am “not compatible with life”, most babies do not live past 2 weeks and less than 10% of babies like me do not live past the 1st year of life but I am still here and I am still fighting and living my life like any other baby, I am too loved to be going anywhere ❤️

All I ask is for kind people to donate to help my mammy and daddy who have always been very hard working people, in this time of need so that they don’t have to worry about the cost of living along with my 2 big brothers and 1 big sister ❤️

My family want to be able to spend every single moment with me without having the worry and stress of costs, so anything would be greatly appreciated ❤️ please keep me in your thoughts and prayers to help me keep fighting this battle, thankyou for reading ❤️