Baby Freya’s constant battle
Donation protected
My daughter Freya was born at 36 weeks due to us having no fluid from 25 weeks pregnant. She was born by elective section and thrives as soon as she was born and we came home on day three.
At 8 weeks old Freya went blue and floppy and stopped breathing. We were rushed to hospital where they diagnosed breath holding.
At 12 weeks Freya’s chest caved in and she stopped breathing again. Once again we were blue lighted to hospital where this time they diagnosed sepsis.
At 15 weeks old Freya got broncilitis which put her back in the hospital. This time they sent us to see the ears nose and throat doctors who immediately transferred her to another hospital for emergency surgery. They discovered Freya had something called laryngomalacia which meant her voice box was covering her airways. They caught her voice box to open up her airways and also diagnosed silent reflux. Once out of surgery Freya was unable to breath on her own and was oxygen dependant for 5 days.
At 6 months old Freya was failing to grow and still only weighed 8lb 13oz.
She put on a high calorie milk but it made Freya very ill. We were admitted to the hospital where they diagnosed a cows milk protein allergy. She spent days in hospital on a new milk and learning how to feed again as she had stopped eating.
We had only been home a week when Freya stopped breathing again and we were blue lighted to hospital. We had only been there 30 minutes when Freya stopped breathing. The room was suddenly filled with 16 doctors and a crash team. Watching my beautiful baby be resuscitated and have needles inserted and oxygen masks on her face broke me heart once again. Doctors said she had bronchitis and sepsis yet again. Freya is still in the hospital now. Still on oxygen 6 days later, antibiotics 3 times a day, daily blood tests and now a feeding tube as she is no longer strong enough to feed.
We have asked over and over again for help when at home to be told she doesn’t qualify or there isn’t the funding. Dla have said Freya doesn’t require any more care than another child her age. I’ve had to cut my working hours which has resulted in tax credits cutting our money. My brother who lives with us has had to take so much time off work to help with my other children and Freya that he hasn’t even worked in the last 5 weeks.
I am hoping to get help to pay for travel and food costs while in hospital and for all Freya’s appointments. I’m also trying to buy an apnea mat and says monitor for at home to try and ease our worry and to make sure we can always act quickly when Freya has her apnea episodes. Thank you for taking the time to read this and even if you can’t donate we would really appreciate a share or even just a prayer for my beautiful princess warrior.
At 8 weeks old Freya went blue and floppy and stopped breathing. We were rushed to hospital where they diagnosed breath holding.
At 12 weeks Freya’s chest caved in and she stopped breathing again. Once again we were blue lighted to hospital where this time they diagnosed sepsis.
At 15 weeks old Freya got broncilitis which put her back in the hospital. This time they sent us to see the ears nose and throat doctors who immediately transferred her to another hospital for emergency surgery. They discovered Freya had something called laryngomalacia which meant her voice box was covering her airways. They caught her voice box to open up her airways and also diagnosed silent reflux. Once out of surgery Freya was unable to breath on her own and was oxygen dependant for 5 days.
At 6 months old Freya was failing to grow and still only weighed 8lb 13oz.
She put on a high calorie milk but it made Freya very ill. We were admitted to the hospital where they diagnosed a cows milk protein allergy. She spent days in hospital on a new milk and learning how to feed again as she had stopped eating.
We had only been home a week when Freya stopped breathing again and we were blue lighted to hospital. We had only been there 30 minutes when Freya stopped breathing. The room was suddenly filled with 16 doctors and a crash team. Watching my beautiful baby be resuscitated and have needles inserted and oxygen masks on her face broke me heart once again. Doctors said she had bronchitis and sepsis yet again. Freya is still in the hospital now. Still on oxygen 6 days later, antibiotics 3 times a day, daily blood tests and now a feeding tube as she is no longer strong enough to feed.
We have asked over and over again for help when at home to be told she doesn’t qualify or there isn’t the funding. Dla have said Freya doesn’t require any more care than another child her age. I’ve had to cut my working hours which has resulted in tax credits cutting our money. My brother who lives with us has had to take so much time off work to help with my other children and Freya that he hasn’t even worked in the last 5 weeks.
I am hoping to get help to pay for travel and food costs while in hospital and for all Freya’s appointments. I’m also trying to buy an apnea mat and says monitor for at home to try and ease our worry and to make sure we can always act quickly when Freya has her apnea episodes. Thank you for taking the time to read this and even if you can’t donate we would really appreciate a share or even just a prayer for my beautiful princess warrior.
Organizer
Samantha Norman
Organizer
