Imagine if…

You woke up preparing for your wedding just one week away.

You didn’t feel quite right, as could be normal; one would think it was nerves or a bug…

This is a story that could be you, me, or any of us…

You have the wedding we all dream about. Yet this strange illness continues.

It happens on your honeymoon...The doctors think it is nerves.

It continues for years (to come). And yet, no one can define it. The best and the brightest cannot define it so it must not be real. And yet it is…

It will be additional years before they give it 2 names: Spinal Myoclonus and Cervical Dystonia. And yet, despite all odds, with the help of a team of so many specialists, you will be blessed to have 3 daughters, all healthy and happy…

Those 3 amazing girls will continue to grow and prosper with the support of their Mom and Dad, despite the ongoing medical challenges.

Mom discovers that while there is no cure for her illnesses, there is a way to live a better more fulfilling life, thanks to her medical team at Mayo Health. She is on a new path learning to live and thrive with her illnesses.

Shortly afterwards, Dad discovers that something is just not right... He has symptoms not normal for anyone at his age. The local doctors speculate many things. And everyone in the family wants to disagree with any tentative diagnosis. But again, the Mayo team helps to confirm.

This is ALS.

How could this be? Such an amazing couple who has endured so much and yet has blessed the world with a wonderful family...

It is a true story.

It is a love story.

It is the story of my little sister Laura and her husband Bob Mayer.

They are so special to all of us as their family.

But they are also an example of the very best people we should all wish to be. And they need your help.

We are asking for you to consider helping them as they continue on their difficult journey. And we thank you for your support, whether it be in donation, thoughts or prayers.

Please click this link, should you wish to donate to the Mayer family.