Hi, Penelope has been recently diagnosed with Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT ) which is a very rare genetic heart disorder which causes Penelope to collapse and experience cardiac arrest (sudden death in young individuals)
Penelope had her first collapse over 3 years ago and Donna her Mam has lived with the unknown until very recently. After being told of Penelope’s diagnosis and trying to come to terms with the changes in life for the whole family, especially Penelope our aim is to raise awareness and funds to help get a defibrillator and help Donna make her home a space that Penelope can feel safe in. At Donna’s request any funds raised above Penelopes needs will then be donated to other families of heart children.