My name is Leah and it kills me resort to this. My son was born with an Unicuspid Aortic Valve, an extremely rare Congenital Heart Defect. We have monitored it since we first found out when he was six months old. He has limitations on what he is able and not able to do. We are at Sibley Heart Center in Gainesville and children's Healthcare of Atlanta every 6 weeks. He will eventually need open Heart surgery. His latest results at CHOA showed that his valve had grown three times the size since our last visit. As of now, all we can do is keep monitoring it. As you can imagine this has put a strain on our family physically and financially. I am currently working two full time jobs and just barely getting by. Bills are piling up and unfortunately my car has been giving me trouble as well. If there is anything any of you might be able to do to help, I would be forever grateful and thankful.

God Bless