Archers home adaption

Hi, so not a lot of people are aware but myself and my friend Shannon in February 2024 will be climbing Snowdonia. This has been in talks forever but Shannon suffered a knee injury which resulted in reconstructive surgery however by the time we climb Snowdonia she will be 6months into her recovery. This was originally just for the fun of it but I mentioned to Shan shall we do it to raise money as of course she agreed.

 This brings me to my friends Emma and Lee, in May 2019 Emma gave birth to a beautiful little boy Archer their 2nd born after their daughter Arabella, however Archer was born with a rare genetic condition called CHARGE syndrome and once he was born he was swiftly transferred from East Surrey to GOSH where they cared for him from newborn and with multiple operations which as he does took it all in his stride. However Emma and Lee then had to balance life at home with Arabella, work and after 6months they we’re allowed to bring their beautiful boy home but Emma and Lee’s lives had to massively adapted because they then became medical parents/carers….

An what comes with having a child with complex medical needs even though Archer is absolutely thriving and getting bigger and stronger they also have to adapt their home which comes at a massive cost, which no parent should have to deal with. So from our walk and permission from Emma and Lee I’m hoping to raise funds to be able to help towards Archers adaptations at home.

Below is a little on the work which is required to adapt their family home to make it safe and accessible for Archer and also easier on them to care for Archer. At 4 years old they are having to carry him up and down the stairs multiple times daily which is having a toll on their physical health. The adaptions required include having a fully wheelchair accessible downstairs bedroom and wet room created for Archer with ceiling track hoists. This is to be created by an extension extending out from the current property in to the family garden. They also live in a corner house of a close so are having to carry Archer to and from the car therefore a current garage they have at the back of the property is going to be knocked down and a hard stand built so Archer can be easily brought to and from the car via the back of the house. The approximate cost of this work has been quoted around £100K the local council will only be able to help the family through the disabled facilities grant but this grant only covers approximately 60% of the work, the rest is down to the family to then pay for the work to be completed.

 They are currently a one income family due to Emma having to resign from her travel career of 14 years to become a full time parent carer for Archer. Planning permission has been granted and the family are ready to proceed with Archers adaptions to create the safe space he needs and also to give his big sister back her bedroom which she has shared and been disturbed many a nights for the last 2 years.

Any donation will be greatly appreciated ♥️ here are some pictures of Archer from new born to now