Hi Name is Chris Fallon and I am trying to raise funds to assist Bonnie and Andrea to attend the CCDC Scientific & Patient Symposium in Utah this June.

Bonnie has a terrible condition called Creatine Transport Deficiency, which she 1 of only 150 people in the world with no cure. She currently has to take over 70 tablets of medication to alleviate the symptoms, which can be intellectual disability, speech and language delays, autistic behaviour, muscle weakness, hyperactivity, behaviour issues, gastrointestinal problems, slow growth, delayed motor skill, and easy fatigue. Imagine the muscles of your jaw are to tired to chew food!

I have known both Bonnie and her Mum Andrea for a number of years in my role of President of a tennis club, which they are always willing to volunteer and help out. Bonnie is totally addicted to playing tennis and watching tennis.

All money raised will help with their flights, accommodation and any other expenses incurred.