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Aidan Peaslee is currently 8 and a half months old. He loves his mama, he loves his dad. He loves his dogs, Sage and Xavi - especially Xavi. Aidan loves eating whatever his mama’s eating (balsamic couscous!). Aidan loves meeting new people, smiling and laughing. He loves being tickled and having books read to him. He is a champion sleeper. Aidan is naturally happy and full of his own sunshine.
Aidan also lives with Infantile Spasms, a very rare and very dangerous form of epilepsy found in infants and toddlers. His mother, Ali, is a nurse, and his father, Alex, is a pharmacist. As they were cooking their Thanksgiving dinner, it was clear to them that Aidan was possibly seizing. They rushed him to the nearest children’s hospital for an emergency EEG. Due to their medical background, within two days they were able to work with Aidan’s specialists to determine that he has Infantile Spasms . As soon as possible they started a medication, ACTH, that forces his body to overproduce steroids in order to stop the spasms. They endured a month of this medication, which has devastating side effects: significant weight gain, insomnia, discomfort, irritability, compromised immune system, high blood pressure, insatiable hunger, among others.
Each spasm threatens Aidan’s brain health, overall development and causes damage. Since the first round of ACTH, Aidan’s development has been mostly paused. Alex and Ali are working closely with Aidan’s doctors to monitor long term high blood pressure, a rare and dangerous side effect of the ACTH. It took nearly two months to find a medication combination that works for Aidan.
Thankfully, the first round of ACTH reduced the spasms very quickly. While Aidan had an abnormal EEG in January and started an anti-seizure medication, his spasms returned on February 19th, and he requires another round of ACTH.
Alex and Ali are frugal and thoughtful with how they spend their time and money, yet resources are quickly flying out the door. They have both used up all sick time/FMLA between Ali’s maternity leave, and Aidan’s intense need for care and three hospitalizations. Given the pandemic, and Aidan’s immune system being compromised, the amount of physical support and respite they can accept is extremely limited. The intention of this GoFundMe is to support Alex and Ali from a distance, and the funds are expected to be used in the following ways:
Formula - Aidan eats up to 70oz of formula a day while on steroids and ACTH. It is important to meet his hunger demands so his body doesn’t become stressed and trigger more seizures.
Medication - Aidan’s blood pressure medication is intended for adults and costs $600 per month out of pocket.
Time - Alex and Ali are out of time. In the event Aidan has an emergency, and they cannot work, funds will help offset what has been lost. It could also be as simple as: they are having a particularly difficult day and need to order food, which will save them time and give Aidan the attention he needs.
Aidan also lives with Infantile Spasms, a very rare and very dangerous form of epilepsy found in infants and toddlers. His mother, Ali, is a nurse, and his father, Alex, is a pharmacist. As they were cooking their Thanksgiving dinner, it was clear to them that Aidan was possibly seizing. They rushed him to the nearest children’s hospital for an emergency EEG. Due to their medical background, within two days they were able to work with Aidan’s specialists to determine that he has Infantile Spasms . As soon as possible they started a medication, ACTH, that forces his body to overproduce steroids in order to stop the spasms. They endured a month of this medication, which has devastating side effects: significant weight gain, insomnia, discomfort, irritability, compromised immune system, high blood pressure, insatiable hunger, among others.
Each spasm threatens Aidan’s brain health, overall development and causes damage. Since the first round of ACTH, Aidan’s development has been mostly paused. Alex and Ali are working closely with Aidan’s doctors to monitor long term high blood pressure, a rare and dangerous side effect of the ACTH. It took nearly two months to find a medication combination that works for Aidan.
Thankfully, the first round of ACTH reduced the spasms very quickly. While Aidan had an abnormal EEG in January and started an anti-seizure medication, his spasms returned on February 19th, and he requires another round of ACTH.
Alex and Ali are frugal and thoughtful with how they spend their time and money, yet resources are quickly flying out the door. They have both used up all sick time/FMLA between Ali’s maternity leave, and Aidan’s intense need for care and three hospitalizations. Given the pandemic, and Aidan’s immune system being compromised, the amount of physical support and respite they can accept is extremely limited. The intention of this GoFundMe is to support Alex and Ali from a distance, and the funds are expected to be used in the following ways:
Formula - Aidan eats up to 70oz of formula a day while on steroids and ACTH. It is important to meet his hunger demands so his body doesn’t become stressed and trigger more seizures.
Medication - Aidan’s blood pressure medication is intended for adults and costs $600 per month out of pocket.
Time - Alex and Ali are out of time. In the event Aidan has an emergency, and they cannot work, funds will help offset what has been lost. It could also be as simple as: they are having a particularly difficult day and need to order food, which will save them time and give Aidan the attention he needs.