Donation protected
This is a story about a little girl named Kameron. Her story is quite amazing and a true testament of strength. She and her brother Keaton were born at 25 weeks. Both weighed under 2lbs at birth. It was a long battle in the NICU for 18 weeks. Both suffered from tremendous complications due to prematurity. Kameron however endured more than her brother. After 7 days she had a perforated bowel, that led to an emergency surgery. This was only the first of many.
Her body was so small and fraile to endure such trauma that she ended up developing a brain bleed (hydrocephalus). Although the first few months were touch and go…she proved her strength over and over again. Her and brother were finally strong enough to go home and start growing. For the first few years life, mom was able to leave her career and stay home to run to all of the appointments and therapies for the twins. Mom was there for each and every surgery (which is over 35 surgeries now), therapy, doctor appointment and milestone.
At 2 years old, the twins father left the state. This left mom finding her way on her own. Getting back to her career field and working fulltime while still caring for the twins 110% full time. Mom had done her best at saving for a van for her twins. Around the time the twins turned 6, their father decided to take mom to court to fight to get the kids out of state for 50 % of the time. Mom then spent every last bit of savings (over $35K) on her lawyers to be sure the kids best interest was taken into account. A huge setback for anyone, especially a mom that was saving for a wheelchair accessible van.
Kameron is such a beautiful little girl. She lives with a condition called Hydrocephalus. This is an abnormal accumulation of fluid on the brain. She has a shunt in her brain that helps to drain the fluid into her heart to keep the pressure in her brain stable. There is no cure for hydrocephalus. Kameron has had multiple shunt revision surgeries.
Due to the severe pressure on her brain in her early years she was also diagnosed with a condition called cerebral palsy. This affects Kameron’s lower limbs. She is unable to walk. She is in a wheelchair daily to get around. She is non-verbal, but does have a communication device that she is learning how to communicate on. She is such a bright and funny little girl.
Although she can’t speak, you can see her love and joy in her beautiful eyes. She can light up a room when she wheels in. She is in the 2nd grade now in a special needs class and has really accomplished so much in her 8 years that nobody would’ve imagined. Her mom is constantly working on therapy with her. Kameron will have a lifetime of appointments and therapies.
As Kameron ages, she’s like any other kid…she’s growing and getting heavy. Although Kameron is tube fed and unable to eat by mouth, she’s followed closely by a GI doctor to ensure she is growing at an appropriate rate. She is currently weighing in over 50 lbs. Mom is strong, lifts Kameron in and out of bed, the bath, her wheelchair and even the family van.
But as Kameron is getting bigger this is harder and harder on mom, her only caregiver. Mom has researched wheelchair accessible vans, but with the price tag on them, there is no way she can increase her payment by much more than she’s paying for her current van. Mom can be stubborn and tries to do everything on her own, but as her friend I know a nice down payment would be a tremendous blessing to keep her payments around her current payment.
The van would allow safety for Kameron as she won’t be lifted in and out of the van into her car seat. She will be able to simply roll in and strap down.
Kameron made an art project and she was so proud of herself that her teacher sent this photo to her mom. God is good!
These kiddo's are so blessed to have a mommy like her!
Kameron on her way to school.
Just a new mom and her babies, God's greatest gifts to her!
Help spread the word!
Her body was so small and fraile to endure such trauma that she ended up developing a brain bleed (hydrocephalus). Although the first few months were touch and go…she proved her strength over and over again. Her and brother were finally strong enough to go home and start growing. For the first few years life, mom was able to leave her career and stay home to run to all of the appointments and therapies for the twins. Mom was there for each and every surgery (which is over 35 surgeries now), therapy, doctor appointment and milestone.
At 2 years old, the twins father left the state. This left mom finding her way on her own. Getting back to her career field and working fulltime while still caring for the twins 110% full time. Mom had done her best at saving for a van for her twins. Around the time the twins turned 6, their father decided to take mom to court to fight to get the kids out of state for 50 % of the time. Mom then spent every last bit of savings (over $35K) on her lawyers to be sure the kids best interest was taken into account. A huge setback for anyone, especially a mom that was saving for a wheelchair accessible van.
Kameron is such a beautiful little girl. She lives with a condition called Hydrocephalus. This is an abnormal accumulation of fluid on the brain. She has a shunt in her brain that helps to drain the fluid into her heart to keep the pressure in her brain stable. There is no cure for hydrocephalus. Kameron has had multiple shunt revision surgeries.
Due to the severe pressure on her brain in her early years she was also diagnosed with a condition called cerebral palsy. This affects Kameron’s lower limbs. She is unable to walk. She is in a wheelchair daily to get around. She is non-verbal, but does have a communication device that she is learning how to communicate on. She is such a bright and funny little girl.
Although she can’t speak, you can see her love and joy in her beautiful eyes. She can light up a room when she wheels in. She is in the 2nd grade now in a special needs class and has really accomplished so much in her 8 years that nobody would’ve imagined. Her mom is constantly working on therapy with her. Kameron will have a lifetime of appointments and therapies.
As Kameron ages, she’s like any other kid…she’s growing and getting heavy. Although Kameron is tube fed and unable to eat by mouth, she’s followed closely by a GI doctor to ensure she is growing at an appropriate rate. She is currently weighing in over 50 lbs. Mom is strong, lifts Kameron in and out of bed, the bath, her wheelchair and even the family van.
But as Kameron is getting bigger this is harder and harder on mom, her only caregiver. Mom has researched wheelchair accessible vans, but with the price tag on them, there is no way she can increase her payment by much more than she’s paying for her current van. Mom can be stubborn and tries to do everything on her own, but as her friend I know a nice down payment would be a tremendous blessing to keep her payments around her current payment.
The van would allow safety for Kameron as she won’t be lifted in and out of the van into her car seat. She will be able to simply roll in and strap down.
Kameron made an art project and she was so proud of herself that her teacher sent this photo to her mom. God is good!
These kiddo's are so blessed to have a mommy like her!Kameron on her way to school.Just a new mom and her babies, God's greatest gifts to her!
Help spread the word!
Organizer and beneficiary
Kenna Durant Jett
Organizer
Waddell, AZ
Kelly Bertetto
Beneficiary