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Hi my name is Stephanie and I'm a single parent to my daughter who has complex needs. She is severely autistic, has global delayed development and epilepsy. She has problems with her vision and depth perception. She is a wheelchair user and has no sense of danger and frequently hurts herself. She still relies on me for everything as she did as a baby. Feeding, washing, nappy changes, reminders to drink, therapies and medication.
I have always worked full-time while caring for my daughter. I have gone through cancer twice which meant that most of my 30s were constant hospital visits, surgeries and chemo treatments (6 years of intravenous treatments) and then 8 years ago I was diagnosed with Fibromyalgia. Despite these illnesses I have still worked full-time to provide for my daughter, most of the time on 3 hours sleep and latterly in constant pain. That is until 3 years ago, when burn out had me standing on the edge of a cliff contemplating the unthinkable....one more step and this all ends. This triggered a move back to the UK after a short time abroad for support from my family.
I have bought a home for us from my savings and I have carried out as much of the renovation work as possible by myself to reduce the costs, but I have run out of money while remodeling for my daughter's needs. I still need to put a bathroom downstairs and if possible a bedroom as getting Rosie upstairs on my own is a real struggle. She is terrified of things that she doesn't understand therefore a chairlift is of no use to her. I have already gone through local government for funding but we are only entitled to a room being converted to a bathroom downstairs with over a 2 year wait. I am currently living with my parents while renovating which is not ideal as they are both unwell and Rosie is very disruptive and can be aggressive.
I am going down this route as being on benefits for the first time in my life I can't access loans to get Rosie and myself out of this situation. As it stands 1 month I will buy flooring for a room, the next month I will pay for someone to install.
Being able to put a bedroom and bathroom downstairs for Rosie is going to be life changing for both of us. It will allow us to avoid dangerous situations on a daily basis, like using stairs where I would physically have to support Rosie's full weight (she's 22 and about 12 stone) while encouraging her to ascend or descend, the risk of fall and injury is high. This will also help reduce Rosie's stress and anxiety levels as doing something that scares her triggers meltdowns, like using stairs elevates her anxiety which results in her being aggressive towards me, which I know she can't help but it doesn't change the fact that I am black and blue most of the time from her outburst.
Any help at all would be greatly appreciated. Thank you in advance. #buildaroomforrosie
#aroomforrosie
#gofundmearoomforrosie
#gofundmebuildaroomforrosie
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miss S Smith
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