My identical twin James and I were born in 2004, 10 weeks early. We are survivors of twin-to-twin transfusion syndrome. Because of this condition, I am profoundly disabled, quadriplegic with severe spastic cerebral palsy, epilepsy and profound learning difficulties. We live with our Mum & Dad in Chester in the UK.
I live with my family in a lovely home in Chester, England. As I’ve grown older, and needed more and more help, the house has become too small for me. Soon I will need two-to-one care, 24 hours a day. We need more space for my supplies, my equipment and my carers. And we need to keep the family together.
We have a big problem. Any house I move to needs to be adapted for me. That can include:
- Widening doorways for my wheelchair
- Adding ceiling track hoists
- Creating ramped and level access
- Installing my specialised bath
Mum and Dad can’t adapt a house while I’m living there. They can’t afford to buy another house without selling the existing house. There aren’t many places suitable for me to move to while work is underway and my brother really doesn’t like to be away from me. Staying together is always the best option.
On top of that, moving house once is going to be hard enough (especially since James struggles with change), but moving twice - once into temporary accommodation and again into the finished house - is almost unthinkable. The best option by far is to make the new house ready while we’re still living in the old house. Then we move just once.
To do this is going to take a phenomenal amount of money. I feel very cheeky asking for help, but my Mum and Dad don't know how else we're going to do this: provide the home I need and keep the family together. That's the mission. And we need to do this, if possible, before James and I are 18, in September 2022.
Read more about my story and this Big Problem on the A Home for Mo website my dad made for me. Then come back here if you can help!
Thank you so much,
Mo "Mr Gorgeous" Pomeroy