Eight months ago, Axton was just like any other happy, active three-year-old. He ran, played, laughed, and brought constant joy to those around him. No one could have imagined how quickly everything would change.

Axton has since been diagnosed with Krabbe Disease — an extremely rare and devastating disease that attacks the myelin sheath around the nerves in the brain and central nervous system. The disease effects many basic functions including movement and muscle control, swallowing and feeding, vision and hearing, speech and cognitive function. It is terminal, there is no cure, and the deterioration for Axton has been rapid.

In such a short time, this beautiful little boy has lost so much. What began as subtle issues with his walking has progressed at a heartbreaking pace. Axton can no longer walk, stand, or even sit up on his own. He cannot feed himself and now relies completely on others for his care. His speech has been affected, and he is experiencing vision problems. The speed of this decline has been devastating for his family to witness.

His parents, Steve and Jami, are doing everything they can to surround Axton with love, comfort, and care through every moment. Both parents have had to step away from work to stay at home to care for Axton and support their family through this heartbreaking situation.

This fundraiser has been created to help ease the financial pressure of daily living expenses and ongoing care, so Steve and Jami can focus entirely on what matters most — being there for Axton and to make the most of the time they have left together.

Any support, whether through a donation or by sharing this page, would mean the world to them.

Thank you for taking the time to read Axton’s story and for keeping him, Steve, and Jami in your thoughts.