Hi, I'm Baby Nathan and I need your help. I'm 12 months old. I was born with a rare disease that affects 1 in 2,000,000 people called Cutis Laxa Type 3. My mommy (Pamela) and my daddy ( Mando ) are going to tell you all more about my story.
This is a picture of my mom and I ⬇️
(Please read this campaign all the way to the end. Thank you very much for stopping by.) What is Cutis Laxa Type 3 ?
Cutis Laxa Type 3 This disorder is also known as autosomal recessive cutis laxa type 3 (ARCL3). Affected individuals develop the characteristic skin symptoms of cutis laxa along with growth deficiencies, moderate to severe intellectual disability, loose joints and skin, cataracts, corneal abnormalities, Mal Rotation, seizures, involuntary muscle contractions that force the body in abnormal, sometimes painful movements and positions, Trouble eating, cyclic vomiting and severe acid reflux.
Doctors noticed i wasn't growing normally in my mommy's tummy. When i was born, my mom and the doctors were puzzled because they had no idea what was wrong with me. Through my daddy’s extensive research and Project Baby Bear we were able to find answers they discovered that I had Cutis Laxa Type 3.
This is a rare disease that affects 1 in 2,000,000 people. The sad part is that babies with Cutis Laxa Type 3 have no prognosis, no known cure and there are no treatments, so my mommy and daddy don't know how to help me. The Painful Side Of Having A Rare Disease...
On top of that, people like me with a connective tissue disorder have a premature aged appearance, which get more than their fair share of looks, stares, whispers, and finger-pointing. It is heartbreaking for my parents and it can have a devastating effect on me as I grow up. I need your help because I want to be a normal kid and have a normal life. I hope this doesn’t sound like a lot to ask.
There is no cure for Cutis Laxa Type 3 and there’s no magic treatment. The best option is to start a Fund for Research and continue to raise awareness.
The Bright Side Is That I Was Blessed With Loving Parents...
God blessed me with loving and caring parents that have worked hard to give me the best life possible. Since I was born, my mom and dad have worked tirelessly to make sure that I felt loved and supported. They also want me to live a normal life just like every other kid my age. How Can You Help Me?
My hospital bills have reached around $1,000,000 My parents had to stop working in order to care of me and my older brother who has autism. Also my parents have to look for doctors out of our state in order for me to meet some cutis laxa experts, The cost of travel expenses and everything else will be high that’s why my parents created this campaign.
Great progress is being made by the donations and support I’ve received so far. I’m beyond grateful for everyone that has supported my cause. And I had help from the media and all my new friends that are supporting me and sharing my story via my daddy's Instagram account https://www.instagram.com/auspiciousmando/
But it's still a long road to get the money for my care,
I’d be forever grateful to you if you can find it within your heart to help me get started with this fund, if not then at least share with your contacts.
Please donate now to help me have a better life. We are close to reaching our goal, but I can’t do without you. By choosing to donate to (Baby Nathan's Care Fund) you join me on my fight to live a normal life. Hopefully, you also feel that I should grow up without the fear of never finding a cure for my condition, I just want a chance for a normal life.
Will you help me with a donation? Please, click on the DONATE NOW button on the right side ➡️ and donate today. Any amount counts. If you cannot donate please share the link on your social media. If you can, follow us on all of our social media platforms!!!Instagram: https://www.instagram.com/auspiciousmando/
Baby Nathan, Pamela and Armando.