Niall and Aisling set an ambitious target of €2.1 million in order that Dan could travel to America for groundbreaking treatment.
Public support for Dan and Spinal Muscular Atrophy has been amazing, and the Donoher family reached their target in April 2020. Inspired by the #do it for Dan campaign, a number of individuals have approached SMA Ireland looking to continue fundraising for the small number of other families in Ireland with children suffering from Spinal Muscular Atrophy.
So take the #RawEggChallenge today and donate to SMA Ireland and continue your support for Dan and all the children with Spinal Muscular Atrophy who desperately need your support to access treatment.
About the disease:
Spinal Muscular Atrophy is a rare genetically inherited neuromuscular condition affecting circa 1 in 10,000 worldwide. The SMA gene mutation causes extreme weakness and lifelong muscle wasting, affecting the arms and legs, but also breathing, swallowing and head control. People with SMA are grouped into one of four types based on severity. Historically, 95% of children born with type I have died before their second birthday.
SMA Ireland represents the 25 children and 30 adults living with Spinal Muscular Atrophy in this country. Research towards effective treatments continues.
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44 Cluain Droichid
Directors: Professor Emmeline Hill, Paul O’Malley, Anton Mannering and Jonathan O’Grady
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Fundraising team: SMA Ireland (2)
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