This is our son Harry. Do you know what is worse than being told your child is terminally ill? Being told there is NO CURE. Well, New Genes, Inc. was created by us to raise desperately needed funds to continue research into gene replacement therapy trials. Harry has Juvenile Batten Disease. A clinical trial is close to going live. But we need more help. Please donate as much as you can and change the lives of not just Harry but other little kids affected by this deadly disease. Thank you, Love Susan and Shawn