Hi ,

I am Jo, Mumma to a precious little boy called Jamie John.

Jamie was born with Metatropic Dysplasia - a very rare form of dwarfism.

Jamie also has severe kypho scoliosis which means his spine is C shaped .

Due to the shape of his spine Jamie is unable to sit, crawl or walk.

Jamie’s chest is very narrow and he has grade 2 lung disease .

He has been on oxygen 24/7 since October 2024 and has to sleep on a bipap machine.

He has very low bone density meaning his bones are very fragile , too fragile and too small for surgery at this point.

we hope that one day he shall be strong enough and big enough to have the correct surgery .

Friends and family have been suggesting a Go Fund Me page for Jamie for years but I’ve always been a little reluctant as it feels cheeky asking people for money but I’ve finally decided to go for it as we want to make life for Jamie and his siblings as comfortable and happy as we can .

we would particularly like to raise funds for equipment that he may need in the future, family days out and to make adaptations to our home and garden to make things easier for Jamie and us .

one day we would love to be able to have a sensory area in the garden for Jamie with a nest swing .

There isn’t a great deal that Jamie can physically do but he does enjoy being held in the swimming pool and laying with one of us to support him on a nest swing .

Jamie has been through a lot since he was born but he is always incredibly brave and always smiling.

Thanks for reading and thank you from all of us in advance to anyone that donates to Jamie John’s Journey.

xx