Hello everyone, my name is Cohen but you will notice I’m called Coco. I am 3 years old and arrived very early in to the world spending just 25 weeks in my mummy’s tummy, that’s a massive 15 weeks early. Arriving this early has left me with a few niggles. Let’s say that the bop bops (Cohen means Doctors) think they are massive hurdles in life but I am showing them I can do it and I’m proving them wrong. These are my medals and I wear and I fight them with pride.....Quadriplegic cerebral palsyDystoniaVocal cord palsyScoliosis Epilepsy High frequency hearing lossUnsafe swallowJejostomy fed (a tube that goes in to my bowel sound cool right)And last but most scary of them all is chronic lung disease. This is pretty poop if I’m honest, I have funny little balls (Cohen means cysts) that are growing in my lungs meaning I am very poorly little boy Mummy will write the medical terms of what this means for me. Cohen has asked me to explain to you all what chronic lung disease is and what it means for Cohen. The lungs of a newborn especially a premature babies are fragile and are easy damaged, with injury, the tissue inside the lungs become inflamed and can break down causing scarring. This scarring can result in difficulty breathing and increased oxygen needs. Mechanical ventilation, oxygen use, low amount of surfactant, and prematurity the lungs especially the air sacs, are not fully developed. These are all factors that have contributed to Cohens extremely poor lung function. As Cohen said he also has cysts on both lungs. He is under a specialist respiratory team. Heartbreaking for Cohen and us as a family, we were told on 14th February 2018 that Cohen has just 25 % lung function and we have been told we may have 2 months or two years with Cohen which is an unknown amount of time but Cohen will heartbreakingly die young. Mummies have said enough now they are not like the bop bops they never give up on me.I have proved them wrong so many times and I will continue todo so. I do however have one little thing I can’t help with and that’s the lovely postcode lottery, we live in an area that has very limited funding for children like me and when the bop bops put a lovely medal that I don’t want to accept of non-active palliative care not many professionals are really willing to spend there pennies out of there pot, this leaves me with big holes in my development and learning as I need special equipment to help me walk help me talk help me stand help me play everything in my life is a little different from the 3 year that you imagine running around playing my medals are just that they will not define my life. With your help and kind donation I will be able to access all the equipment and day to day activities of general life.I wear them with pride but will show everyone everyday I will not be beaten. If you tell me I can’t or won’t do something I will show you I can I am Cohen and these are my miracle moments. My disabilities are not contagious but my smile is Coco x