- N
- M
- C
This is Rafael, three months old. Rafael was born and has been in CICU in Children's Mercy Hospital since June 2, 2025. He has a heart defect called heterotaxy and has two very leaky valves. Rafael has gone through two open-heart surgeries to fix his leaky valves, but they have failed; his valve is still very leaky. We were told that there was nothing else they could do for Rafael but have him go into a very risky heart surgery with only a 4% chance of surviving in order to help his liver be better. So, we took that 4% and made a decision on continuing with everything. Last week, he was placed on an ECMO machine (life support) because all of his organs collapsed, and he had so much retained fluid on him. They told us he would be in a coma state, but that same night, Rafael woke up and was awake and alert. Doctors couldn't believe it because he is still showing us how strong he is and wants to continue to live! Rafael does not give up; he has been such a fighter and a strong little baby with lots of hope to keep living. He has given it his all, so he will be going into his 3rd open-heart surgery to get a mechanical valve placed in his heart on Sept 10, 2025, to help his liver get better because it has been determined he will need a heart transplant, and in order to be put on that list, his liver needs to get better. It has been very tough going through all of this because he's been intubated since the third day he was born. I have only been able to hold him three times since he was born, but it's also been very tough to split myself in two different places at two different times sometimes because we have three wonderful kids at home as well, 14, 9, and 2 (brothers). It hasn't been stressful for us because we are fighting with Rafael and for Rafael, trying to give him every chance we can to be able to repair his heart and live. God has shown us many times that He is there and that Rafael has a very big purpose in this world for us and for him. We have never done this, but with so little income coming in and bills stacking up and having to be at the hospital day and night, we are asking if it's within your heart to help us get by through this situation and support us with a small donation for hospital bills. It would be a blessing for us and for our family. Any little bit counts, and we want to thank you for taking your time to stop by and read Rafael’s story. We are very blessed to have him in our lives, and we will continue to fight with him and for him, and we are leaving it in God's hands! Please continue to keep praying for Rafael to one day be able to come home with his family and brothers!
UPDATE: Rafael is such a warrior 2% on the table on him making it trough surgery, he did rafael made it trough surgery and he is recovering he had to keep the pace maker temporarly due to heart block! on september 30, 2025 he was taken into OR for a permanent pace maker to help his heart rythm and it all went well he is currently recovering from surgery hoping to be back ok feeds soon so that his liver and kid ey get better to Have his Heart Transplant! Thank you to everyone who has donated towards his goal! ❤️
i also have cashapp
$Laliz510
Este es Rafael, de tres meses. Rafael nació y ha estado en la ICU del Children's Mercy Hospital desde el 2 de junio de 2025. Tiene un defecto cardíaco llamado heterotaxia y dos válvulas con fugas. Rafael se ha sometido a dos cirugías a corazón abierto para reparar sus válvulas con fugas, pero han fallado; su válvula sigue teniendo muchas fugas. Nos dijeron que no había nada más que pudieran hacer por Rafael excepto someterlo a una cirugía cardíaca muy riesgosa con solo un 4% de probabilidades de sobrevivir para ayudar a que su hígado mejore. Entonces, tomamos ese 4% y tomamos la decisión de continuar con todo. La semana pasada, lo colocaron en una máquina ECMO (soporte vital) porque todos sus órganos colapsaron y tenía mucho líquido retenido. Nos dijeron que estaría en estado de coma, pero esa misma noche, Rafael despertó y estaba despierto y alerta. ¡Los médicos no lo podían creer porque todavía nos está demostrando lo fuerte que es y quiere seguir viviendo! Rafael no se rinde; Ha sido un gran luchador y un bebé fuerte con mucha esperanza de seguir viviendo. Lo ha dado todo, así que el 10 de septiembre de 2025 se someterá a su tercera cirugía a corazón abierto para que le coloquen una válvula mecánica y así ayudar a que su hígado mejore, ya que se ha determinado que necesita un trasplante de corazón, y para poder ser incluido en esa lista, su hígado necesita mejorar. Ha sido muy duro pasar por todo esto porque ha estado intubado desde el tercer día de nacido. Solo he podido sostenerlo tres veces desde que nació, pero también ha sido muy duro dividirme en dos lugares diferentes en dos momentos diferentes, a veces, porque también tenemos tres hijos maravillosos en casa: de 14, 9 y 2 hermanos. No ha sido estresante para nosotros porque estamos luchando con Rafael y por él, intentando darle todas las oportunidades posibles para que pueda reparar su corazón y vivir. Dios nos ha demostrado muchas veces que Él está ahí y que Rafael tiene un gran propósito en este mundo para nosotros y para él. Nunca habíamos hecho esto, pero con tan pocos ingresos, las facturas acumulándose y teniendo que estar en el hospital día y noche, les pedimos que nos ayuden a superar esta situación. Sería una bendición para nosotros y para nuestra familia. Cualquier pequeña contribución cuenta, y queremos agradecerles por tomarse el tiempo para visitarnos y leer la historia de Rafael. Somos muy bendecidos de tenerlo en nuestras vidas, y seguiremos luchando con él y por él, ¡y lo dejamos en manos de Dios! ¡Por favor, sigan orando para que Rafael algún día pueda regresar a casa con su familia y hermanos!
Tambien tengo cashapp
codigo: $Laliz510
Organizer
