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I am not sure where to begin with this story.
Sara has been terminally ill her whole life. she has struggled to do daily activities but has been able to do a lot of stuff when she was younger. I wanted to put a little bit into perspective of Sara's medical history because we voice about ARPKD (autosomal recessive polycystic kidney disease and liver failure and encephalopathy but in all reality Sara has been diagnosed with many more medical issues than i have ever seen in anyones medical charts so i have made a list for anyone who would like to research to see what Sara goes through on a daily basis as her pain worsens and worsens day by day.
Medical diagnosis
1. autosomal recessive polycystic kidney disease(ARPKD)
2. chronic lower back pain
3. history of splenectomy (spleen removal)
4. infection and inflammatory reaction to peritoneal dialysis catheter(infection in port while on home dialysis)
5.J oint swelling
6. Iliopsoas abcess
7. Chronic Muscle Pain
8. Orthostatic Dizziness
Neuropathy
10.DM (diabetes mellitus)
11. Anemia of chronic Disorder
12. Arteriovenous Fistula ( Failed Fistula)
13.Deep Venous Thrombosis
14.Lymphadenopathy
15. Gastrointestinal Hemorrhage
16.Patent Foramen Ovale
17. Hyperparathyroidism
18. Arthralgia of hip
19. Depression
20. Pleural Cavity Effusion
21. Decubitus Ulcer of Coccygeal region
22. Hyperammonaemia
23. Hepatic Encephalopathy
24. Left Renal Mass
25. Hypothyroidism
26. Carpal tunnel of left wrist
27. End stage Liver disease
28. History of pulmonary embolism
29. Iliac Vein Stenosis
30. Calciphylaxis
31. Decreased Mobility
32. Bacteremia
33. Cellulitis
34. Hyperglycemia without ketosis
35. Systemic Inflammatory Response Syndrome (SIRS)
36. Hyponatremia
37. Weakness of both legs
38. Abdominal pain
39. Peritonitis
40. Hypokalemia
41. Hyperphosphatemia
42. Anemia in ESRD (End stage renal disease)
43. Peritonitis
44. Septic Shock
45. Sepsis Associated Hypotension
46. Acute Septic Pulmonary Embolism
47. Hypocalcemia
48. Left Atrial Thrombosis
49. Epistaxis
50. Supratherapeutic INR
51. Subclavian Steal Syndrome
52. SVC Syndrome
53. Hypotension Due to Hypovolemia
54. Vertigo
55. Adrenal Insufficiency
56. Bilateral Pneumonia
57. Subtherapeutic International Normalized Ratio (INR)
58. Bandemia
59. Chronic Pain Syndrome
60. Chronic Anticoagulation
61. Hypercalcemia
62. Joint Swelling
63. Gastroparesis
64. Uncontrolled Constant Pain
65. Hyperparathyroid Bone Disease
66. Aspiration into lower Respiratory Tract
67. Esophagitis
68. Lactic Acidosis
69. Decubitus Ulcer of Sacral Region Stage 3
70. Fluid overload
71. Acute Respiratory Failure With Hypoxia
72. Thrush
73. Liver Cirrhosis
74. Cellulitis of Right Thigh
75. Lupus
So Many of you know that Sara is terminally ill and her illness is getting progressively worse as days go by. as i am writing this i am sitting next to her at Harborview medical center as she is very swollen and has not been able to control her pain as much as she would like to be able to. Sara is an amazingly strong woman who would love to do activities that other 30 yr olds can do but unfortunately she is unable to. Sara has a very limited income and has a big heart and tries to help everyone she can be able to do what they need to do in life. As many of us know the Washington state medical sucks and recently Sara has gotten new wounds all around her abdomen and they have been opening causing burning pain and her caregivers and family need to change her dressings more often now than ever and well insurance doesn't cover most supplies due to Saras sensitive skin. i would like to ask if anyone is able to help donate the wound care supplies needed for Saras care even if it is just 1 of the items we need.
ALSO
Marjorie is her mother and tries her best to get whatever Sara needs but she is also raising 2 of her nephews a 1yr old and a 13 yr old and she also has a son who is 25 yrs old and Sara who is 30. Margi has a very limited income as well and does not get any income when Sara is hospitalized to due Margi being one of Saras caregivers through the state she does not have an income when Sara is hospitalized which is now happening more often than before. Marjorie is a woman who would give her last dollar or the shirt off her back if someone needed it so i am asking if anyone could please help marjorie with anything you can so she does not have to worry about paying her bills and she can stay focused on Sara, and her 2 nephews.
If anyone has any questions please feel free to ask me as Margi is a busy woman and is very overwhelmed at this time.
Thank you everyone
Kelly Hart
Sara has been terminally ill her whole life. she has struggled to do daily activities but has been able to do a lot of stuff when she was younger. I wanted to put a little bit into perspective of Sara's medical history because we voice about ARPKD (autosomal recessive polycystic kidney disease and liver failure and encephalopathy but in all reality Sara has been diagnosed with many more medical issues than i have ever seen in anyones medical charts so i have made a list for anyone who would like to research to see what Sara goes through on a daily basis as her pain worsens and worsens day by day.
Medical diagnosis
1. autosomal recessive polycystic kidney disease(ARPKD)
2. chronic lower back pain
3. history of splenectomy (spleen removal)
4. infection and inflammatory reaction to peritoneal dialysis catheter(infection in port while on home dialysis)
5.J oint swelling
6. Iliopsoas abcess
7. Chronic Muscle Pain
8. Orthostatic Dizziness
Neuropathy
10.DM (diabetes mellitus)
11. Anemia of chronic Disorder
12. Arteriovenous Fistula ( Failed Fistula)
13.Deep Venous Thrombosis
14.Lymphadenopathy
15. Gastrointestinal Hemorrhage
16.Patent Foramen Ovale
17. Hyperparathyroidism
18. Arthralgia of hip
19. Depression
20. Pleural Cavity Effusion
21. Decubitus Ulcer of Coccygeal region
22. Hyperammonaemia
23. Hepatic Encephalopathy
24. Left Renal Mass
25. Hypothyroidism
26. Carpal tunnel of left wrist
27. End stage Liver disease
28. History of pulmonary embolism
29. Iliac Vein Stenosis
30. Calciphylaxis
31. Decreased Mobility
32. Bacteremia
33. Cellulitis
34. Hyperglycemia without ketosis
35. Systemic Inflammatory Response Syndrome (SIRS)
36. Hyponatremia
37. Weakness of both legs
38. Abdominal pain
39. Peritonitis
40. Hypokalemia
41. Hyperphosphatemia
42. Anemia in ESRD (End stage renal disease)
43. Peritonitis
44. Septic Shock
45. Sepsis Associated Hypotension
46. Acute Septic Pulmonary Embolism
47. Hypocalcemia
48. Left Atrial Thrombosis
49. Epistaxis
50. Supratherapeutic INR
51. Subclavian Steal Syndrome
52. SVC Syndrome
53. Hypotension Due to Hypovolemia
54. Vertigo
55. Adrenal Insufficiency
56. Bilateral Pneumonia
57. Subtherapeutic International Normalized Ratio (INR)
58. Bandemia
59. Chronic Pain Syndrome
60. Chronic Anticoagulation
61. Hypercalcemia
62. Joint Swelling
63. Gastroparesis
64. Uncontrolled Constant Pain
65. Hyperparathyroid Bone Disease
66. Aspiration into lower Respiratory Tract
67. Esophagitis
68. Lactic Acidosis
69. Decubitus Ulcer of Sacral Region Stage 3
70. Fluid overload
71. Acute Respiratory Failure With Hypoxia
72. Thrush
73. Liver Cirrhosis
74. Cellulitis of Right Thigh
75. Lupus
So Many of you know that Sara is terminally ill and her illness is getting progressively worse as days go by. as i am writing this i am sitting next to her at Harborview medical center as she is very swollen and has not been able to control her pain as much as she would like to be able to. Sara is an amazingly strong woman who would love to do activities that other 30 yr olds can do but unfortunately she is unable to. Sara has a very limited income and has a big heart and tries to help everyone she can be able to do what they need to do in life. As many of us know the Washington state medical sucks and recently Sara has gotten new wounds all around her abdomen and they have been opening causing burning pain and her caregivers and family need to change her dressings more often now than ever and well insurance doesn't cover most supplies due to Saras sensitive skin. i would like to ask if anyone is able to help donate the wound care supplies needed for Saras care even if it is just 1 of the items we need.
ALSO
Marjorie is her mother and tries her best to get whatever Sara needs but she is also raising 2 of her nephews a 1yr old and a 13 yr old and she also has a son who is 25 yrs old and Sara who is 30. Margi has a very limited income as well and does not get any income when Sara is hospitalized to due Margi being one of Saras caregivers through the state she does not have an income when Sara is hospitalized which is now happening more often than before. Marjorie is a woman who would give her last dollar or the shirt off her back if someone needed it so i am asking if anyone could please help marjorie with anything you can so she does not have to worry about paying her bills and she can stay focused on Sara, and her 2 nephews.
If anyone has any questions please feel free to ask me as Margi is a busy woman and is very overwhelmed at this time.
Thank you everyone
Kelly Hart