Alexis's parents are full time carer's for Alexis & have done their very best to support Alexis using up all savings & additional means.
We are delighted to say we have achieved our 1st goal of purchasing an assessible Wheelchair Van for Alexis & her Family. This will allow Alexis's parents the support they need to allow for easy transportation for Alexis but also the comfort of changing & feeding her in a safe, clean, controlled, environment. Allowing for her own unique space adjusted to meet her needs, which will support comfort , safe transportation, Scoliosis and all other aliments that she has. This is all down to you the general public and fans of Alexis - Thank you.
With sincere thanks to Flesk valley rowing club fundraiser we have also achieved our 2nd goal of one year of at home private Physiotherapy.
As Alexis Needs are ongoing & full time we will continue to support Alexis in the days weeks Months ahead.
We would like to thank all those who continue to embrace our fundraiser by developing and actioning their own fundraising initiatives for Alexis and her needs.
Your donation will not only change Alexis's life but it will go along way to support her parents who have been by her side every minute of everyday, juggling all day to day challenges, paying bills & supporting 24 hour care including night feeds, weekly physiotherapy appointments, visiting temple street, all other appointments & daily life.
With sincere thanks.
Alexis, Her Parents Theresa & Steve
& All founding committee members of Alexis O' Mahony Fund.
Keep up with Alexis & her journey on her social media account: Lets Help Alexis.
Alexis O’ Mahony is a four year old little girl from Killarney who has been living with life limiting conditions since birth and requires 24hr physical and Intellectual care. With a team of helpers including her loving parents, resilience healthcare & the jack and Jill children’s foundation Alexis faces daily battles both at home and at Temple Street Children’s University Hospital Dublin living with her rare primary metabolic condition Pyruvate Dehydrogenase Deficiency. This has led to a brain abnormality called Ventriculomegaly as well as Cerebral Palsy, Epilepsy, Cortical Visual Impairment, Global developmental delay, double hip displacement and sleeping difficulties.
Alexis requires a specialist peg fed ketogenic diet and as well as life long vital medication. She is at high risk of developing scoliosis and therefore requires intense and constant poster management alongside supervision day and night for the above conditions.