Update January 2021
Nick is now 7 years old. He is growing into a beautiful child. However, due to a minor stroke after his surgery on his hermatoma, he has difficulty walking for long distances. There are mobility chairs/ strollers specifically made for older children that would be excellant for Nick. However they are very costly. Any help you can give at this time would be so very much appreciated. Thank you for all of your support.
April 25, 2018
Nick is seizure free and doing great. Tomorrow he's having surgery on his right eye. Last years laser ablation neurosurgery was successful in ridding Nicholas of the seizure causing hamartoma. Unfortunately this neurosurgery caused Third Nerve Palsy hindering the proper use of his eye. Thru all this Nick is always happy, adores his big brother and sister, loves squeezie hugs, and holding hands. He's also learning and enjoying sign language while finding his words and speech. If you can assist this amazingly tough 4 year olds and his family with medical copays and travel expenses or can simply share this post it would be much appreciated.
Nick was born Nov.1 with a very rare syndrome. He will be on meds for life and faces multiple surgeries, his second in May. Nick's parents and siblings, Cailey and Jack, love and care for him and they need not be lost within the financial burden that extreme medical needs bring. So lets assist this miraculous boy as he is helped by his wonderful family.