When my brother first began having trouble focusing and understanding emails, we naively chalked it up to distraction. He was a workaholic, but otherwise incredibly healthy. Then, in June of 2016, he was in LA attending a wedding when we received a strange call from him. He was incoherent, out of sorts. I contacted the hotel who called the paramedics, and within a few hours, I was on the phone with a doctor at the Cedars-Sinai ER who was telling me that my brother could die that night. We flew out on the earliest red-eye. My brother survived, but we were hit with the painful news that he had been diagnosed with Glioblastoma Multiform, or GBM.
GBM is the worst and most common kind of brain cancer. It is responsible for the deaths of Senator John McCain, former Vice-President Biden’s son Beau Biden, and Senator Ted Kennedy, to name a few. GBM can alter a person’s personality, memory, and ability to talk or walk. The treatment is challenging, physically and emotionally. The radiation causes the brain to swell, and the steroids used to keep the swelling down cause hallucinations, anxiety, personality changes, anger, and more.
Treatment effectiveness is measured in months, not years. Even when the disease is “fully removed” it almost always returns. My brother was fortunate to have survived 29 months since diagnosis, including 12 months where he lived an otherwise normal life. Sadly he passed away late last year.
Throughout his experience, my brother maintained his eccentric personality, for example always enjoyed wearing contrasting shoes. Often on our visits to various hospitals, a nurse would whisper to me, “Does your brother know his shoes don’t match?”
It was one of the few times I could smile and say, “That’s not the disease, that’s just him.”
I recently re-laced some shoes with two different color laces to decide which I liked more. The mismatched laces received a lot of attention and kept reminding me of my brother. This was the start of #2Laces. The goal of #2Laces is to raise awareness about GBM and encourage donations for GBM research so that we can find better treatments with better outcomes.
So grab a pair of mismatched laces, lace up your shoes and share a photo on Facebook, Twitter, Instagram with the hashtag #2Laces, then tag the most eccentric friends you have!
Thanks for listening.
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