Speechless for Rett Syndrome

On Sunday 27th October Millie (8 years old) and I will be going speechless to help raise money to find a cure for Rett Syndrome. For 24 hours we will not speak, write, type or text message anyone. The only way we will communicate is by pointing to symbols on a communication sheet of images. We are doing this in support of one of Millie’s dear friends who has this devastating neurological condition (caused by a mutation in the MECP2 gene on the X Chromosome).

Most children and adults with Rett Syndrome will never speak. They are usually unable to walk, or use their hands. They may suffer from breathing problems, swallowing and feeding problems, seizures, anxiety, gastrointestinal issues and severe scoliosis. Every aspect of their daily life is affected in some way.

People with Rett Syndrome battle their complex bodies every day.

They know and understand much more than they show, as their bodies struggle to obey the signals sent from their brains.

​

We know that Rett Syndrome affects the way the brain functions - it does not damage it. Around the world, including in Australia, researchers and medical leaders are making great strides towards effective treatment, and even a cure for Rett Syndrome.

​

A cure for Rett Syndrome is possible, and you can help us find it!