Hello friends, family and everyone who wants to help to save life of Victoria Poliuha. Victoria was diagnosed with Spinal Muscular Atrophy (SMA) at the age of one. This is a progressive neurodegenerative disorder that leads to complete loss of muscle tone and death from breathing complications by the age of 2. There’s a new revolutionary treatment – a gene therapy injection called Zolgensma that repairs the faulty SMN1 gene and stops disease progression. However, this is the most expensive drug in the world at a cost of $2.4 million! We need to raise $1.9M (since the Children’s Hospital of San Antonio, Texas, USA offered a discount). Victoria’s parents and volunteers already raised about 33% of the funds but we still need your help! If 100,000 people donate $13, we can close this fundraiser today.
A lot of you know my mother Maria. Little Victoria is her coworker’s daughter. I have never asked for any donations before, but I know that among us there are a lot of caring and kind hearts that can help save Little Angel’s life.
Victoria fights her disease every day and bravely undergoescostly treatments every week. Please pray for her and support her! Any contribution is welcome and very appreciated.
For more information please see Facebook page https://www.facebook.com/SaveVictoriaTogether ВрятуватиВікторію Сма.